Questions regarding coiling, strokes and decisions regarding treatment

@phoenix33, tell him BH asked mine to turn it back off and she said she rather liked me talking…though she doesn’t have to live with me😂

@Survivor2 its really difficult for us with no medical backgrounds to know what’s best for us, isn’t it? No matter how much we research, we just don’t have the proper training and it can be frustrating as all get out to know which course to take. I believe surgeons use some math formulations to determine rate of rupture, as well as size and location. There’s an unbelievable amount of math, usually statistics gained from research involved. For those of us that have ruptured, our risk of rupturing again is higher than the general population, I believe they take that into account as well. My hope is that one day all the “in house” (medical facility where a specific research is or has been done) will be collected with every other facility and put together for a world wide paper. With computers and networking of specialists, anything is possible.

@skippy for us to tell someone to get it coiled is 1) not following our member guidelines, remember we describe not prescribe! I believe @Cat is concerned with stroking on the table again, but I will let her respond to that if @Cat chooses. I do think as you do that we need to be careful with supplements and the amount we take. I always clear them with my PCP, sometimes I talk to my pharmacist about them. And I always read the warnings…usually I have to go online and read them because my eyesight isn’t able to read all the fine print now😆

TO CAT. Please ignore my previous advice. You must follow the advice of your neurologist and do what you think is best for you. Good luck and God bless

1 Like

As with others that have had an aneurysm burst and survived or living with an aneurysm.
I have always believed that there are modernday miracles, whether it is those for some unknown reason have survived a bleed, the miracles of new discoveries in science, via the medical world about the brain and how it works, including the traditional root of nature: including nutritionists, and even TCM experts and discoveries and even surgeons. How many of our modernday medicines are based on natural sources, but in a synthetic basis, to the traditional thought that you are what you eat, (although sometimes this doesn’t always play out via DNA , the environment etc.
It is nice to have a forum like this to know that we are not alone, and that it is our experience that can help others, and hopefully even working with others in the neurology, nutritional, and other possible cures in the world all working together for the positive.
Everyone is different, and we have the expertise from many areas as above, it would be nice if all of these experts in each specific fields could work together, as you said “anything is possible” they just have to work together. Would parts of the modern system let them?

I am told by my neurosurgeon that I am her miracle of miracles, she is far more intelligent than I am now. I do think all the different fields can work together, in fact I know it. We have a cancer center in Charlotte that does a whole team approach that covers everything from a minister if asked to the nutritionist, therapist, specialized RNs and all the different doctors. Apparently they have a very high approval rate from their patients. That approach, should it remain successful to the patients and their families, no matter the outcome, will eventually bleed over into other fields. We just need to be patient. I always say since my rupture, “You need to be patient to be a patient”.

1 Like