Pressure Headaches from Weather

General
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Hi Folks!

I experienced SAH in December 2020. I was in the neuro ICU for a month after my rupture during which time I had a coiling procedure, etc etc. I’m 31. I didn’t know I had this wee bomb in my head. I didn’t even know what an aneurysm was until I had one rupture. I’m originally from Prince Edward Island, Canada, but have lived by myself in Toronto since 2007. Long story short, I’m in a stroke rehab program in PEI.

I went through a two month period of constant excruciating headaches after I was home from the hospital. I’ve been doing fine re: headaches lately, however I notice when it’s raining that the headaches and nausea return. It’s been raining all day today and I feel extremely ill. I hadn’t experienced migraines before my rupture, but is that what this is? Anyone else deal with debilitating symptoms post rupture/coiling when the weather is heavy and thick?

Thanks for taking the time to read and perhaps provide insight!

Jemima

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Good morning @jemimas! Yes to headaches, I had migraines for about two years after rupture and they put me on a lot of different medication to try to stop them. I think you’re experiencing migraines again, but I’m no doctor…Have you spoken to the folks at the rehab place? Are you able to get a Neurologist, hopefully they have one on your team. You might also want to try an internet search on migraines caused by weather or non specific migraines as I’m not sure the category they would fall into. The other thing I would try is to reach out to the specialist that did your coiling.

All the best
Moltroub

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Jemima, yes also to headaches, like you for about 2 years after SAH and a month in the hospital. I also had them with changes in weather, I was concerned about flying because of the pressure control in an airplane, but that didn’t bother me very much. One thing I’m still dealing with after 6 years is cerebral spinal fluid pressure. Had you been diagnosed with hydrocephalus? What you describe sounds very familiar to me. I’m now on my third VP shunt valve and it is at its highest setting, option was to remove it completely but if things went bad this valve could be adjusted, whereas if it was removed there was no adjustment possible, would need another surgery. So I still have the foggy brain symptoms, I don’t recognize and react to things happening around me very well, and occasional headaches. All are less severe than they wee, so I am getting better, just not “there”……yet.

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I never had a migraine before my rupture, stroke and coil in Feb. of 2019. I have had a daily headache since then. One doctor says it’s tension, the other says it’s migraine. The only thing they seem to agree with is I just need to learn to live with it. I just finished round 3 of physical therapy, 2 months this time. I have gone full circle and start again with new problems. I have heard Botox is the new cure for migraines. I don’t know, I’m needle phobic so I don’t ask about it. I’m one of those people who doesn’t want the cure to be more painful than the problem. You might ask your doctor about it.

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I had a ruptured brain aneurysm 7 years ago. In the ICU for one month, had a coiling procedure followed by a flow diversion stent. Years of physical therapy, the only symptoms left are constant pain in my buttocks and legs which has never gone away. No one has any answers as to why this is happening. Hope you start to feel better, just take one day at a time.

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Hi Jemima, after having an aneurysm burst myself receiving a coil via an op, (not realising I had one until it burst), and still living with another aneurysm on the opposite side of my brain, I understand your issues.

Once I came out of hospital I had very bad headaches, and a stiff neck, felt week and not myself for months. Certain senses of mine seemed to be working over the top, and that I was more susceptible to changes in atmosphere, frequencies in the air, pressure, noises and specific pitches, lights, especially fluorescent light and those lights that pulsate in shops, (I had to walk out of the shops as I felt as if I was going to pass out, and on other occasions I had panic attacks where I used to just want to run out of the area, due to the way in which specific lights or noises building up were affected me and my nerves. When that happened, I become a nervous wreck and needed help to walk as I lost balance, and jumped at every sound around me, as by then my nerves were on edge and over the top in working). This then increased my anxiety, which increased my headaches, (a vicious circle)…
I had no warning about these, but I now know my safe levels, if I feel myself going above these specific levels, I try and calm myself or walk away from the issue if possible whilst remaining clam. As I know how to cope, and can cope with more different types of lights and noises whilst gradually and very slowly learn to be myself near them.

When I saw the Neurologist they just told me that it was normal until the brain and body gets calmed down and settles after the stress and shock. (It can affect people in different ways, and for different lengths of time depending on the area and amount of damage). Unfortunately they gave me no cure for it. I just found my own way to cope.

Over five years on, and I would say that I am about 90% recovered. Although I will never be the same as I was before taking ill, thankfully, I am much better. I know I still feel atmospheric, and frequency changes in a way more that others do, and still sometimes avoid specific fluorescent light that pulsate, as well as specific new loud noises, pitches or vibrations until I get used to them. (I always carry a pair of sunglasses with me and it seems to help).

Personally I am dreading 5g, so I am looking for ways to avoid or shield myself when outside, or in the house. But as I know my limits, how things affect me and dangers I can prepare myself, and learn to cope.
Personally, I guess it was retraining my senses: hearing, sight etc, to gradually get used to hearing specific noises, sounds, etc. seeing specific lights, and cope with this and the related anxiety by calm breathing, meditation, just sitting quietly in the garden with sunglasses on, or having a slow walk. On other occasions I just sat or laid in a dark room with soothing music if needed. Now I know my levels and how to cope. You will find your own ways to cope, relax etc.

I don’t know if it helps, but I got a headache balm made from Lavender and peppermint oil that I rubbed on my forehead, and it helped soothe and calm my headaches. I also took more natural vitamin C, magnesium and other anti inflammatory and helpful foods, and still eat an extended Mediterranean diet… I also drink chamomile or ginger tea and it seams to help when a feel a bit sickly and want to calm myself down.

If you are worried, ask your neurologist and he should help. I went about 6 months after my op for an MRI, and then every year. When you go for an MRI, this will check the healing of the area and show if everything is stable after the op, at the same time they checked my other aneurysm as well as the one that was coiled…

Take one day at a time, and find your own way of coping, relaxing, and doing what you have to do.
We have all done that, and are still here as survivors.

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Hi Mary, I had a coil years ago with a brain op after a blead. I am no expert, but I would look for other cures for a migraine before using Botox for a migraine cure. I used a stick that had Lavender and peppermint oil in it, and just rubbed it n my forehead, and used calming breathing techniques. It worked for me. Hope you can get your issues sorter out.

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@Survivor2 I don’t know what 5g is, can you enlighten me and why you’re concerned…

Confused once again :joy:

Best,
Moltroub

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We have our existing broadband, mobile phones, masts, wireless devices etc. We advanced from 2g, 3g, 4g, and 5g which is the next in latest technology, being brought out in many world areas, and even 6g is now being discussed. From what I can gather 5g uses different wavelengths than to previous g technology widths, as 5g creates a faster data transfer, and needs increased cell towers as it requires more to have a continuous affect for using it in modern and future technology which could open up low, medium and high spectrums, frequencies and wave lengths depending on whereabouts it is introduced. 5g is advertised on the television by certain broadband, and mobile providers.

In telecommunications, 5G is the fifth generation technology standard for broadband cellular networks, which could open up more future technological abilities, which cellular phone companies began deploying worldwide in 2019, and is the planned successor to the 4G networks which provide connectivity to most current cell phones.
5g has a shorter wavelengh than 4g so will need more cell towers.

(I have also read that some street lighting, especially newer ones could have 5g antennas as well). If this is the case, they will be everywhere when anyone walks outside, and in modern technology run by it everywhere in the home, on busses, and other buildings etc. unless anyone has an electronic, wifi etc free area.

There is no longterm data on this, and we don’t know how it will effect any eco systems, or even our own health. I don’t know how correct it is, but I have read that it can cross the blood, brain barrier.
As frequency changes do already affect me, these frequencies of 5g ?

I don’t want to scare other people with the same sort of issue, but as many do suffer from various frequency, pressure and other unexplaned issues after a brain blead, aneurysm issue, I thought I would bring this up so that if there is an issue, we can all prepare for it and help each other in finding some sort of cure, ways to cope, avoidance etc.

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@Survivor2 i get it and yes I understand 5g, have it on my stuff. I just never thought of it as a possible means of affecting our brains. Time will tell I presume. And for our other members, at first I thought Nah, but then I remembered folks with pacemakers can’t get too close to a microwave while it’s running, so who knows? Aluminum balls in the hub caps used to stop police radar from working (learned that in the USN). They have changed that technology so don’t try it, seems there’s a lot of aluminum in vehicles now days.

Thank you for the detailed answer, you know I love them!
Moltroub