Hi Jemima, after having an aneurysm burst myself receiving a coil via an op, (not realising I had one until it burst), and still living with another aneurysm on the opposite side of my brain, I understand your issues.
Once I came out of hospital I had very bad headaches, and a stiff neck, felt week and not myself for months. Certain senses of mine seemed to be working over the top, and that I was more susceptible to changes in atmosphere, frequencies in the air, pressure, noises and specific pitches, lights, especially fluorescent light and those lights that pulsate in shops, (I had to walk out of the shops as I felt as if I was going to pass out, and on other occasions I had panic attacks where I used to just want to run out of the area, due to the way in which specific lights or noises building up were affected me and my nerves. When that happened, I become a nervous wreck and needed help to walk as I lost balance, and jumped at every sound around me, as by then my nerves were on edge and over the top in working). This then increased my anxiety, which increased my headaches, (a vicious circle)…
I had no warning about these, but I now know my safe levels, if I feel myself going above these specific levels, I try and calm myself or walk away from the issue if possible whilst remaining clam. As I know how to cope, and can cope with more different types of lights and noises whilst gradually and very slowly learn to be myself near them.
When I saw the Neurologist they just told me that it was normal until the brain and body gets calmed down and settles after the stress and shock. (It can affect people in different ways, and for different lengths of time depending on the area and amount of damage). Unfortunately they gave me no cure for it. I just found my own way to cope.
Over five years on, and I would say that I am about 90% recovered. Although I will never be the same as I was before taking ill, thankfully, I am much better. I know I still feel atmospheric, and frequency changes in a way more that others do, and still sometimes avoid specific fluorescent light that pulsate, as well as specific new loud noises, pitches or vibrations until I get used to them. (I always carry a pair of sunglasses with me and it seems to help).
Personally I am dreading 5g, so I am looking for ways to avoid or shield myself when outside, or in the house. But as I know my limits, how things affect me and dangers I can prepare myself, and learn to cope.
Personally, I guess it was retraining my senses: hearing, sight etc, to gradually get used to hearing specific noises, sounds, etc. seeing specific lights, and cope with this and the related anxiety by calm breathing, meditation, just sitting quietly in the garden with sunglasses on, or having a slow walk. On other occasions I just sat or laid in a dark room with soothing music if needed. Now I know my levels and how to cope. You will find your own ways to cope, relax etc.
I don’t know if it helps, but I got a headache balm made from Lavender and peppermint oil that I rubbed on my forehead, and it helped soothe and calm my headaches. I also took more natural vitamin C, magnesium and other anti inflammatory and helpful foods, and still eat an extended Mediterranean diet… I also drink chamomile or ginger tea and it seams to help when a feel a bit sickly and want to calm myself down.
If you are worried, ask your neurologist and he should help. I went about 6 months after my op for an MRI, and then every year. When you go for an MRI, this will check the healing of the area and show if everything is stable after the op, at the same time they checked my other aneurysm as well as the one that was coiled…
Take one day at a time, and find your own way of coping, relaxing, and doing what you have to do.
We have all done that, and are still here as survivors.