Thanks for letting me know. I’m happy to respond or help anyone in any way if I can. Suffering alone is the hardest part.
Kelly
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I had a 14mm unruptured treated after sentinel headache episode. Treatment was coiling. It’s been 18 months but I still get on and off headaches…. Never head ache in my life before the first sentinel headache which helped me identify my aneurysm.
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Also I felt a feeling of being overwhelmed when there was a lot of people/ stimuli around but it went away after 3-4 months.
I use to exercise regularly but post the first Annie coiling, it was never the same. If I pushed myself to get back to levels before the episode I’ll end up with headache later in the day. That’s a bit better but still continues after 18 months and I had to generally reduce my intensity of excerise substantially cutting hiit and weightlifting completely. A topic I’ll like to discuss in a separate thread
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Hey @AkhriPasta,
I too have found my tolerances have dropped. I have to pace my activity, so as not to trigger symptoms, even years later. It used to be I had 2 speeds, full pace and stopped. Now, even 1/2 pace can be a balancing act.
Please do @AkhriPasta,
To start a topic:
If you return to the list of latest posts or here’s a link Latest topics
On the right hand side, down low, you’ll see a blue circle with a +. If you place your cursor on it, it will expand with the title “New Topic”.
Click it and a Text box will appear. At the top it asks for a title for the topic, then it says category. I’d suggest placing it in ‘General’ as this way everybody gets to see it and the opportunity to respond. The optional tags are for keywords, but as it says this is optional. And below that is your textbox.
Hope it helps
Merl from the Modsupport Team
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I had two unruptured aneurysms behind my temples and they were both clipped in 2011, 6 weeks apart. My surgeon said one was thinning and bubbling when clipped. I consider myself a very lucky woman! The only reason I knew was because of a hunch, no symptoms. My mother had a ruptured aneurysm at the age of 49 and lost her speech and was paralyzed on her right side. When I turned 49, after helping to care for my mother for 20 years and her father had one as well, my PCP checked me after my persistence to be checked by an MRI. I was stunned and terrified to hear that I had two, and needed two separate surgeries. Initially afterwards I had some confusion and have slight memory issues. I had quick shock type pains in my head for about a year which I was told was normal. The only thing that is annoying to me is my head is very itchy now, as my mother’s was, but she could not speak to tell us but always wanted her head scratched. We never knew why. I feel like maybe it’s a rare symptom, as I’ve never heard of it happening to anyone else. My surgeon said it would go away after a year or two but it hasn’t and nothing helps it but I can live with an itchy scalp for sure!
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It’s so good to see you here! Thanks for coming back and posting, it means a lot. I do think you may be on to something with both you and your mom having an itchy head. It really might be genetic. Did your Neurosurgeon ever come up with a reason?
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I’m a survivor of a ruptured brain aneurysm at the base of my skull in 2018. After recovering (several months) my surgeon told me that I had three more aneurysms and that I needed a craniotomy (same year). Since then it’s been stents and coils ect. But I have terrible memory loss and can’t form the words in my head to come the same way out of my mouth. I get lost driving and get confused in large arena type settings, the worst part for me is losing my ability to speak correctly in social situations and I see it happening but I have no control of it. I am blessed to be alive and I thank my Heavenly Father for that!
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Thank you. My neurosurgeon only said that it was itchy because the nerve endings were healing and not exposed to the air so it takes longer to heal. However, I don’t know why thirteen years later it’s still very itchy and nothing helps.
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When I cut my finger with a butcher knife by accident of course, it took about 20 years for those nerves to quit itching. I’m unsure why it takes so long. Like you, nothing seemed to help much. I would put Vitamin E oil on the scar after the wound healed that helped a little, the GP I had back then recommended it. It was cheaper to just buy the pills, pop one end with a sewing needle and squeeze out what I needed than to buy an actual bottle of oil. It may have just been to reduce the scar tissue. I wonder if a Neurologist could help you.
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That’s interesting and confirms what he said. I saw a dermatologist thinking he could help but at this point I can actually live with scratching my head. It could have turned out so much worse for me. I forgot to mention, I’ve never laughed so much since my surgeries. I asked my surgeon years ago why and he said some people come out of this laughing and some crying. My mom used to cry all of the time initially after her surgeries. She was very emotional. I, on the other hand, can get an entire room laughing when I do so I really have no complaints.
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Just wondering how long your pipeline diverters have been in?
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I had it done in November of 2017 with followup Angiograms. I think I go back in few years for my next one like 2027 they would push out angiograms as long as things were ok.
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This is exactly what I’ve worried about I had a SAH in 2011 and I’m just getting my records.
I moved away and I got my records so all my doctors here keep saying most people don’t walk away from what you had so now that I’m having headaches and dizzy spells again I feel like something is off and I had a CT- came back clear result, but I keep thinking that it’s either the result of the SAH or there’s another one they can’t see without an angiogram
FORGIVE ME IF I’M CONCERNED! but I don’t know if I get to walk away a 2nd time
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I had 4 unruptured aneurysms. I didn’t have any headaches after. I do have silent migraines usually once a month. On the right side but I had an aneurysms by ophthalmic artery. It only last 20 minutes and it’s like an aura that is small and grows and then disappears. I can do anything while it’s happening. I also have some balance/standing issues if on my feel too long. But as I say I’m thankful for being here. My adventure started 8 years ago. Hang in there!
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Hi, I had a non-ruptured brain aneurysm repaired in October 2023 with coils and a stent. You are asking for neurological symptoms post procedure, I think it goes outside the neurological definition.
It took about three months to get my stamina and energy back, and no driving during that time. Two days prior to this first procedure my opthalmologist once again said, you do not have glaucoma - I do not think you will get glaucoma - the Only reason you are “glaucoma suspect” is because of your family history. Yes, yes, doc, I understand. He said this every 3 months at my follow ups. On that check up in October, I finally graduated to a check every 6 months, yay!
Six months later in April 2024, I had a follow up cerebral angiogram which showed the stent was closing. Two days prior to this check up in April, I saw the opthalmologist, and he burst into the room and said you have glaucoma, and I said no I don’t, but suddenly I have moderate stage glaucoma. Then I had another procedure a few days after that to open up the stent. Now it is 4 months later and I’m still trying to get my stamina back, so maybe it will take longer with 2 sedations in 6 days. Turns out I had multiple mini strokes leading up to this.
The other thing that happened is my migraines are significantly less frequent, less severe, and shorter. I retired early due to their severity, so this is pretty dang amazing.
I’m so glad to hear things went well for you! Can I ask what you’ve gathered from this informal inquiry?
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