After having a second stent added 6 months after my coil and stent, I woke up with panic attacks, tremors in my lower legs and crying for no reason. Now I have anxiety, orthostatic tremors, and PBA. All 3 things have completely wrecked my life. I wish I didn’t need that second stent. My legs shake while standing, I was diagnosed in December 2022, I was lucky, I pushed for a neurologist that knew about the tremors I had after me finding everything I could on line! Which gives me anxiety, it’s like going through a death, but it’s your happy life that’s died. Stress makes the tremors worse, I take medication for it, but it doesn’t really help that great and I’m gonna have this till I die and it can get worse. Woohoo! I take medication for the PBA so no crying all day for no reason, that’s a plus. So all in all I’m suppose to be happy for the aneurysm not killing me….. but I’m not happy about that. If I knew this would be the outcome come……, feeling like a burden, needed to be able to sit when doing anything at all, including standing in line at the pharmacy…. Or standing anywhere! If I could of chosen my outcome, I would have never had the surgery. But this is just me, I had a very active, happy life, now I’m withdrawn, sitting a lot, and not doing much of anything, so was it worth it for me NO.
Sounds like you’re having a rough go of it to say the least. Did you get an EMG for your tremors? I haven’t had one, the PA at the Dermatologist dumped me on the Rheumatologist after finally doing a biopsy he and PCP thought were fatty tumors but good lord they hurt like the dickens! Turns out the biopsy suggested either SLE or DM, the Rheumatoid determined ADM and says it doesn’t affect my muscles. I do at times question that, but the treatment is the same medication. The EMG should have been done I think when it first started and I couldn’t walk three steps without crying like a baby. It is also a lifetime issue. Before I got in to see the Rheumatologist, I was wondering why I was saved from a rupture just to have to deal with it. It was a bad time for me, eventually I worked myself out of it and figured I was still here for a purpose. Since then, I’ve met many who go through serious health issues and have similar experiences. We end up figuring we’re still here for some reason or another and we just have to figure it out. Do you have a good cane to help you in walking?
Glad to read you’ve got the PBS under control. That’s a huge positive!
Do you practice relaxation breathing when you feel a panic attack coming on? Are you able to focus your mind on what’s happening now, around you? Hopefully you’ve found a good therapist to help you through all of what you’re going through. It really does sound like an overload on your plate. Take one day at a time, try to see a positive every day and something beautiful. We are here for you!
Robin, I just read this article at AARP What Is Tai Chi and What Are Its Health Benefits?. And thought of you!
I know when I first ruptured I fell - a lot. I was seeing my Neurosurgeon a lot and every time I went in I had to report the number of falls id taken. I despised doing that. It just made it more obvious I had issues I couldn’t overcome at the time. I did PT as much as my insurance allowed.
A place near our previous home offered Tai Chi. I think it was a minimal fee of $5. It wasn’t much. There was a woman in her 80’s. The instructor had to catch me a few times. She was happy to have someone else sit with her to do chair Tai Chi. It did help me after a few months I could do it standing up more than the first day. The others in the class were really supportive. So I’m unsure which helped more. Maybe you’ve got a class near by that you can do it or chair yoga. Something to look into.