Just heard that I am booked for 15th July for my surgery. I have been warned that it could be cancelled if there is no HD bed available in neurosurgery, so fingers crossed.
Thanks to everyone for replying to my other messages. I really appreciate you all xxx
Hurray! At least you have a tentative date scheduled, so the wheels are starting to turn.
Sending not just good - but tge best - energy your way!!
Fin Whale Fan 
Great news! Will they tell you before you leave home if there’s a bed available or is it just a hit and miss? When she put my stent in, I had a bed in NSICU but they had to move me to another unit as the man that was moving in needed the better care.
I’m keeping you and yours in my daily thoughts!
It will be hit or miss on the day, like last time but hopefully it will not be so long before I know
Hi @Bordercolliemum -
Well, technically, it is the 15th for you, but I certainly hope you are resting and not on your way to surgery just yet!!
Apologies, finally logging off from work, but I have been thinking of you all day and just wanted to send along my good wishes for today (my tomorrow). Hoping it actually goes off this time!
Please keep us posted on how it goes.
Fin Whale Fan
Thank you I am sitting in the admissions lounge now, with everything crossed that today will be the day
Do let us know how you’ve done as I’m hoping you’re in ICU for your overnight stay.
Cancelled again today, just spent 7 hours hoping for a bed but just been sent home again. Totally fed up
So surgery was cancelled again, this time after a 7.5 hours in admissions lounge. Staff were better at communicating what was going on today, but feel gutted and cried when they told me. So feel like a real idiot. They now have to ring to make another appointment but it is my son’s graduation a week on Friday. So it is going to have to wait until after that.
I just have no words. I am so so sorry you are having to go through it in this way.
Just my own $.02 as we would say in the States, but, personally I don’t think YOU should feel like an idiot. YOU did nothing wrong!!
Please hold your head up high, and keep up the good fight!!
Hugs across the Pond!!
Fin Whale Fan
That’s as hard as anything. I think crying was exactly the thing to do, so well done! There no need to feel silly for crying: I think it just shows the scale of impact of the system’s failure.
Have a fantastic time at the graduation! My son’s graduation is next Thursday.
Lots of love,
Richard
Absolutely nothing wrong with crying, ever! The ability to be able to cry out of frustration, fear, pain, sadness, etc is a gift. Many times we have carers in our young lives or adults we look up to that tell us not to cry which is bovine feces in my opinion!
I’m in agreement with everyone, enjoy the graduation it’s a very big deal! Isn’t it wonderful you get to see him receive his diploma! Do they give the diplomas out in the UK or do they give the graduate a rolled up paper and send the degree through the post? Does he get a party afterwards? Is he planning a holiday before going into his field or back to school for another degree?
Please tell him congratulations for us! Oh and ask him to give you a hug from all of us!
I am so sorry. You should not be the one jumping through hoops. Crying is the only proper way to vent frustration over events you can’t control. Enjoy your son’s graduation.
So another proposed surgery date of 29th July but again no guarantees because of pressures on theatre and beds. I have looked at asking to transfer to another hospital but only trauma centres offer the surgery I need and that means that there are always going to be emergencies which will knock me off the surgery list. I would also have to travel a longer distance for the surgery and makes it trickier for my family I suppose. I feel mean for being so fed up because people need the surgery and bed more than I do I suppose 
.
Not convinced that it will happen but have to go through the motions I suppose. On the up side does not clash with my son’s graduation which is on Friday so that is excellent news.
Hoping that “third time is a charm!” for you. Still thinking of you!
In the meantime, please congratulate your son on his graduation, and well done to his parents for getting him this far. Congratulations to all!! Enjoy the celebrations!!
Fin Whale Fan
Doesn’t sound mean to me for what it’s worth, sounds like a whole lot of frustration! One older person I knew would probably have had a comment about getting “this shit show on the road”.
Glad they didn’t up and mess with the big day! Besides crossing my fingers and feet(I can’t cross my toes, BH can) I may just light a candle for you on the 26th
I am Hoping that you Truly get a bed this time. I also hope whichever surgery it is everything goes wonderfully well and without any complications. Take care
I am sorry for joining this thread late which surgery are you having? If you don’t mind me asking? I had A PICA Ruptured Brain 
Aneurysm with VP SHUNT IN 2014 contracted Bacterial Menengitis while in ICU WAS ONE day away from getting a trach THANK GOD I was able to be weaned from vent, however December 2025 after 12 years my shunt quit working has to have it replaced. 1st surgery was a piece of cake… (Thank goodness) Then 5 1/2 weeks later my incision got infected from inside out and DEHISSED. I was admitted to ICU and was in hospital for a little over 2 weeks. Left on IV ABX and no shunt however now late September I will be getting my Shunt reinserted.
Hello, sounds like you have had a difficult time. I am having a flow diverter stent. I already had coiling in Sept 2024 when my aneurysm ruptured but this is now compacted and the neck of the aneurysm is widening, which is the reason for the stent. I got hydrocephalus following the rupture and had a VP shunt inserted. I was in ICU for 21 days and a further week in hospital before I came home. In Feb 2025 had revision of my shunt as it was blocked both ends. It is a programmable shunt and have struggled to get the setting at level I can tolerate.
I am hoping get the surgery this week. Kindest regards Sue
Hi @Bordercolliemum -
Sorry for the delay, but life interrupted my plans (I know that this group completely understands what that is like!)
I just wanted to check in, and see if you were able to get your surgery this week. Hoping it all went very well!
Fin Whale Fan
Had my surgery, so.post op in hospital today. Hoping to go home today xxx