My name is Joanne (Jojo) and I’m excited to join this supportive community. I recently received a diagnosis of a 12mm left ICA aneurysm, which was discovered incidentally during an MRI for a different condition. I don’t have a family history of aneurysms or bleeds, I do have some related health concerns, including headaches and subfertility.
I’m here to learn more about managing my condition, share experiences, and connect with others who understand what it’s like to navigate life with a brain aneurysm. I look forward to being part of discussions and supporting each other on this journey.
Glad you’re here you are definitely among friends here Will keep you in my thoughts and prayers. There are advances in this area… I’ve had a rupture 20 years ago and it was clipped… My new one will have a stent at the end of the month. I’m missing a few vessels in my brain and create to much pressure in my anterior communicating artery area. Recovery is different for everyone… my first took a year because of the clipping but this one should only be a few weeks to months. .
Thank you so much for your reply. I guess most dont realise until either a rupture or routine scan for another condition. So I’m just waiting to see what the outcome is from this 16wk wait to see Neuro. I get constant headaches/migraines unsure exactly what the correlation is to my aneurysm, hopefully I can find out sooner rather than later.
I really hope they can find out as well, being in limbo is rough. They have made so many advances in this area. The device I’m having put in at the end of the month is in clinical trial. I bet you are gonna do great & have a good recovery
This last one they found because of a tooth abscess… My face was severely swollen and the access was causing facial droop, they did MRI and found this new one. You’re right most don’t realize until after it ruptures. I didn’t 20 years ago or this time.
I’m sorry to hear about that second aneurysm. I wish all the best for you moving forward with this clinical trial. And hope to stay updated on here with you and others.
You figured it out and didn’t need me! Fantastic! I was reading your story and thought we’re on opposite sides of the same coin. I ruptured and they did the MRA for pituitary and found an adenoma that is constantly changing in size. As @MBSch has said, the medical science has grown leaps and bounds. I eventually received a stent about 7 years after I ruptured.
We do have folks from around the world, I’m thinking we have members in every continent. Some are active for a time and leave for a while. Some stay and don’t respond but do read topics. I understand a lot of folks on the internet read our topics but don’t join.
Many of our members are told headaches and migraines are not related to an aneurysm, whilst others have been told about sentinel bleeds. I never had a migraine until I ruptured, it was a doozy of one. My headaches usually were from stress in my last job, sometimes allergies or not eating/drinking enough. I was told to hydrate, rest, hydrate some more, eat protein and hydrate some more.