My anurism was unruptured and coiled I still have my scans as they found another small one in front lobal area I don’t like them either but have started to relax a bit more I have nights when I can’t settle down and headaches a lot
These boards are meant to give differing views and opinions. Good and bad. I would want to know everything possible before I had a procedure. People's good experiences and bad ones-that way you can be prepared. Its not a matter of not being nice-its a matter of being truthful.
Muriel Steven said:
To go into any procedure with positive thoughts is a heck of a lot better than with horrible, scary thoughts wouldn't you agree? I was taught when I was young that if you didn't have something positive to say, say nothing. This would certainly apply on here.
Amy Van Patten Ofenbeck said:It wasn't meant to frighten-please. People are just relating their experiences. Some are good some are not.............
Muriel Steven said:Why would you frighten someone who was already scared? Too many doom and gloom people on here. I had an MRA checkup for my two coiled aneurisms and it was nothing. Better to give encouragement, not more fright. Muriel Steven
Betty Schoonover said:I have had a bad experience having both procedures and now I choose to have light sedation for the procedures. If you feel that is what you need d
ont be afraid to talk to the doctor about it.
Hi Nina:
I had two aneurysms filled 5 years ago and still go every year for an MRA to make sure that they are not leaking and that there aren't any more. I also have Fibromuscular Dysplasia of the carotids which cause a lot of the symptoms you describe. (You can check out FMD at: www.fmdsa.org) I also saw a video of some new information about "Flooding" which is what I experience often when I am tired or in over-stimulant situations (i.e. loud places, moving lights, etc.) You should view this video so you can understand a lot more of what you are experiencing:
https://www.youtube.com/watch?v=M7VEuMNgQSU#t=170
I have been a horrible insomniac since my surgeries (I had 5), I tried melatonin and it didn't do anything for me. I am even on a sleep medication, but I still walk the floors all night so I just do my housework cleaning and sleep when I am tired. Everyone has a different experience and the only way you will find what works for you is to go through the process. I wish you well and the strength that you have in you, to move forward. You have already faced the worst...now go and live the beautiful life ahead of you :)
I thought his site was suppose to help people. I cannot see how telling someone, before they go into any procedure, that it is horrible is going to help in any way. People look for encouragement, not discouragement. I certainly would be very upset if I came here for help and encouragement and read that comment. An MRI/MRA is not bad at all. It is confining and it is noisy but it is not dangerous, it does not hurt and it leaves no after effects. I hope that all your doom and gloom does not do too much damage.
Amy Van Patten Ofenbeck said:
These boards are meant to give differing views and opinions. Good and bad. I would want to know everything possible before I had a procedure. People's good experiences and bad ones-that way you can be prepared. Its not a matter of not being nice-its a matter of being truthful.
Muriel Steven said:To go into any procedure with positive thoughts is a heck of a lot better than with horrible, scary thoughts wouldn't you agree? I was taught when I was young that if you didn't have something positive to say, say nothing. This would certainly apply on here.
Amy Van Patten Ofenbeck said:It wasn't meant to frighten-please. People are just relating their experiences. Some are good some are not.............
Muriel Steven said:Why would you frighten someone who was already scared? Too many doom and gloom people on here. I had an MRA checkup for my two coiled aneurisms and it was nothing. Better to give encouragement, not more fright. Muriel Steven
Betty Schoonover said:I have had a bad experience having both procedures and now I choose to have light sedation for the procedures. If you feel that is what you need d
ont be afraid to talk to the doctor about it.
well I would be mad if I came here and read how everybody was so peachy keen after their procedures and I wasn't. Like I said these boards are meant to tell the good AND bad of things. I want to hear everyone's story and experience good and bad..........You had a good experience and that's great. I did not and that's the truth.
Muriel Steven said:
I thought his site was suppose to help people. I cannot see how telling someone, before they go into any procedure, that it is horrible is going to help in any way. People look for encouragement, not discouragement. I certainly would be very upset if I came here for help and encouragement and read that comment. An MRI/MRA is not bad at all. It is confining and it is noisy but it is not dangerous, it does not hurt and it leaves no after effects. I hope that all your doom and gloom does not do too much damage.
Amy Van Patten Ofenbeck said:These boards are meant to give differing views and opinions. Good and bad. I would want to know everything possible before I had a procedure. People's good experiences and bad ones-that way you can be prepared. Its not a matter of not being nice-its a matter of being truthful.
Muriel Steven said:To go into any procedure with positive thoughts is a heck of a lot better than with horrible, scary thoughts wouldn't you agree? I was taught when I was young that if you didn't have something positive to say, say nothing. This would certainly apply on here.
Amy Van Patten Ofenbeck said:It wasn't meant to frighten-please. People are just relating their experiences. Some are good some are not.............
Muriel Steven said:Why would you frighten someone who was already scared? Too many doom and gloom people on here. I had an MRA checkup for my two coiled aneurisms and it was nothing. Better to give encouragement, not more fright. Muriel Steven
Betty Schoonover said:I have had a bad experience having both procedures and now I choose to have light sedation for the procedures. If you feel that is what you need d
ont be afraid to talk to the doctor about it.
I am not trying to frighten anyone. Just offering an option, I am sorry if you took it the wrong way. Everyone is different and there are a lot of options if someone is nervous or scared or concerned.
Amy Van Patten Ofenbeck said:
well I would be mad if I came here and read how everybody was so peachy keen after their procedures and I wasn't. Like I said these boards are meant to tell the good AND bad of things. I want to hear everyone's story and experience good and bad..........You had a good experience and that's great. I did not and that's the truth.
Muriel Steven said:I thought his site was suppose to help people. I cannot see how telling someone, before they go into any procedure, that it is horrible is going to help in any way. People look for encouragement, not discouragement. I certainly would be very upset if I came here for help and encouragement and read that comment. An MRI/MRA is not bad at all. It is confining and it is noisy but it is not dangerous, it does not hurt and it leaves no after effects. I hope that all your doom and gloom does not do too much damage.
Amy Van Patten Ofenbeck said:These boards are meant to give differing views and opinions. Good and bad. I would want to know everything possible before I had a procedure. People's good experiences and bad ones-that way you can be prepared. Its not a matter of not being nice-its a matter of being truthful.
Muriel Steven said:To go into any procedure with positive thoughts is a heck of a lot better than with horrible, scary thoughts wouldn't you agree? I was taught when I was young that if you didn't have something positive to say, say nothing. This would certainly apply on here.
Amy Van Patten Ofenbeck said:It wasn't meant to frighten-please. People are just relating their experiences. Some are good some are not.............
Muriel Steven said:Why would you frighten someone who was already scared? Too many doom and gloom people on here. I had an MRA checkup for my two coiled aneurisms and it was nothing. Better to give encouragement, not more fright. Muriel Steven
Betty Schoonover said:I have had a bad experience having both procedures and now I choose to have light sedation for the procedures. If you feel that is what you need d
ont be afraid to talk to the doctor about it.
First I close my eyes, then I imagine music or a machine in my head compatible with the noise.
If you're concerned about being in an "enclosed environment" (as my spouse was) the doctor specified an "Open" MRI machine. He was also given Valium (or something similar) to calm his nerves prior to the test. Be aware if you need to be medicated, you'll probably need someone to drive you home. The only problem I had with MRI/MRAs was that it hurt my back to lay on a hard/flat surface for a prolonged time. But they usually offered a pillow or wedge to place under knees which made it more comfortable. Since I now have a pacemaker, I can't get an MRI/MRA to check on my aneurysm. Wish I could!
I had an angiogram for my one-year follow up after clipping, not an MRI, but was told that it would be an MRI from now on. I’m a bit worried because of the magnets pulling on my metal clips but have been told it’s safe as long as the machine is “up to Tesla 3” in strength. Since I am still a worrier I’d like to know if anyone had issues with the MRI and their metal clips. I will likely ask for sedation for nerves and also because my back hurts after a while.
Muriel Steven, no one said anything “horrible” or “scary.” If everything is super-positive with you, that is great. Others have different experiences and the person was only suggesting that sedation would be possible, if needed. I often read some things on this board that I don’t agree with; in that case, just state that you’d like to share another perspective on it. And by the way, you say everyone should be helpful and encouraging, but you yourself were rather rude in the way you articulated your opinion.
Hi Nina.....
I have to say I hate MRI's....I am very claustrophobic...so I usely take an Ativan and gravol and try to zone it out....last year forgot my meds and 45 minutes seemed like hours only to come out and go back in after the dye....I usely hum to myself that helps...get a sedation for sure if it is too much...we live with enough stress in our lives....let alone get stressed out during procedures...so let us know how you do...good luck and God Bless!!
I agree Jennifer....to some people it is nothing but to others, like myself it is a big deal and saying "there is nothing to it" well be Thankful Muriel that you can have them without any problem....but some of us don't and it is a big deal!!!
Jennifer said:
Muriel Steven, no one said anything "horrible" or "scary." If everything is super-positive with you, that is great. Others have different experiences and the person was only suggesting that sedation would be possible, if needed. I often read some things on this board that I don't agree with; in that case, just state that you'd like to share another perspective on it. And by the way, you say everyone should be helpful and encouraging, but you yourself were rather rude in the way you articulated your opinion.
hi Nina! Mra will have no effect on sleeping or tinnutis, if possible get the info from the hospital re type of clip before you go, I had to wait an hour while the tech retrieved the info, tc xoxo
I had a ruptured aneurysm coiled in 2007 and have had an MRI done every 12 months since the coiling.I too was a little apprehensive the first time, but I have had so many done now that I just close my eyes and relax and the time passes really quickly,I suppose its the fear of the unknown but really there is nothing to fear.I think it is much better to have an MRI done every year than to go through another rupture.All the very best to you and take care Deborah
Thank you for your comment, Darla. But, please tell me who told you the clip on your annie would move? Where did you get the info? Give me more details, if you can. Thanks.
Darla Nitti said:
I do not to do MRIs as I was told it could move the clip on my annie.
Hi Audrey,
Thanks for writing. I watched the video about flooding you suggested. It made a lot of sense. My symptoms have decreased, and I have learned to understand, accept, and cope better within the last several months. It's been a process. I wish I had had a specialist who told me all I'd experience, and how to deal with it, but it just took, and takes time. Thanks again for sharing with me, and for your helpful comments. The joy of the Lord is my strength!
Audrey Martorana said:
Hi Nina:
I had two aneurysms filled 5 years ago and still go every year for an MRA to make sure that they are not leaking and that there aren't any more. I also have Fibromuscular Dysplasia of the carotids which cause a lot of the symptoms you describe. (You can check out FMD at: www.fmdsa.org) I also saw a video of some new information about "Flooding" which is what I experience often when I am tired or in over-stimulant situations (i.e. loud places, moving lights, etc.) You should view this video so you can understand a lot more of what you are experiencing:
https://www.youtube.com/watch?v=M7VEuMNgQSU#t=170
I have been a horrible insomniac since my surgeries (I had 5), I tried melatonin and it didn't do anything for me. I am even on a sleep medication, but I still walk the floors all night so I just do my housework cleaning and sleep when I am tired. Everyone has a different experience and the only way you will find what works for you is to go through the process. I wish you well and the strength that you have in you, to move forward. You have already faced the worst...now go and live the beautiful life ahead of you :)
Thanks to all who took time to answer. I appreciate it. If I go ahead with my MRI's, MRA's (2 x 45 minutes each), I will use ear plugs, plus ear muffs, and medication to relax me. I've had MRI'S before and was fine without med., but now, it's a different story since my central nervous system's been invaded by surgery, and clips. Most of you can understand that. I will update as I can. Thanks again!
not sure if you need the ear muffs, they usually have headphones with your choice of music, radio sta., tc
I had 3 clipped and one that did not rupture, and it can rupture at any time. They could not clip it. . I have these since surgery. Aphasia, couldn’t walk, migraines, thyroid (hypo) 5’9" never weighed more that 145 now I’m up to 190. Can’t sleep, on ambien now and it’s wonderful. Short term memory loss and can’t spell.
I’m ok wiith MRI. YOU ask for what you need. Music, meds. Etc. It’s your life they are looking at. All takes time and will keep you alive. You will be fine!
Hi there, I had a ruptured Aneurysm that was clipped four years ago. I can understand the symptoms you are feeling at the moment, I still have them...I have had several MRI scans and CT scans.since the op. due t other illnesses. Over time the sleeping will improve, I had to have Neuropsychiatrist to help me overcome the sleeping problem, as i had terrible dreams about the Op and after care, and that did help. I still cannot stand crowds due to the noise, and often have ringing in my ears, plus a few other things. The thing I am still here and after all you have been through...so are you. No one likes Scans, but they need to be done. its really uncomfortable for a short time, but you have had Brain surgery!! So be brave it will be over and done with soon, I did a lot of work for Brain Aneurysm research in the UK that involved scans too, so you will come through it just get rid of the fear!! Be strong.