Hi! I’m new also. 3.1 mm wide mouthed anterior communicating artery aneurysm. (4mm high) I have contraindications to aspirin and Plavix (kidney disease on the transplant list) . Which center/surgeon out west (U.S.) does a ton of intrasacular procedures like the Web?
Thanks for starting a new topic Kathy! The WEB is but one type of device, there are many. Different stents for different types I think. I also think you figured that out already. Just curious, why the WEB? Is it because of the blood thinners?
Over the years we’ve had members who have gone out of State for treatment only to have issues finding follow up care in their home state. However others haven’t had any issues, go figure. I was raised in California so pretty much that’s my knowledge base on the West Coast and it would be UCSF or UCLA. Seems in the last handful of years we’ve had quite a few folks go to UCSF for treatment. With that in mind, have you talked to your specialists about the University of Utah? I’d really want my specialists to be conferring with each other and not ignoring if I had something as serious as ADPKD.
Hoping members on the West Coast will come and post…
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Hi. Yes, the daily dose aspirin 325 mg could affect my kidneys (they are only functioning at 25% currently) and the Plavix would contraindicate transplant and peritoneal dialysis (so I would be doing hemodialysis until completion of the course of Plavix if my kidney function drops much lower). Therefore the coil/stent approach concerns me because it requires dual antiplatelet therapy for 6-12 months. I consulted at the university of Utah and they suggested Seal device for this size of aneurysm, but because it has only been around a short time (2022?), their experience with it was 10-20 cases. I would prefer care right here at home, but also if there is someplace close that has high volumes of intrasacular procedures, I would consider travel. I have reached out to the transplant surgeons and the nephrologist at my home hospital, and I have not felt as much collaboration as I feel like this will require.
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Someone here has had the Seal it device! It may have been more than one. I can’t recall who but I think it was this year. Try doing a search. As far as I can remember there are two of us with the same type of stent. Which device used is always about location and size coupled with experience. It used to be everyone here seemed to be getting FRED or PED, but medical science keeps evolving so there are more options.
I couldn’t tolerate Plavix and didn’t know what @oct20 shared about getting levels checked nor that there was something else that could be taken. I am on 81 mg aspirin for the rest of my life.
I did once offer to pick up the tab if my specialists would get together instead of bouncing me around changing my meds. The pharmacist had to keep calling one or the other because of what they were prescribing wouldn’t work with another. I told them all it would be a heck of a lot easier and faster for me. A couple said no need to pick up the tab and they’d be willing but there was one that didn’t want to play well with others. I told that specialist I am not a human Guinea pig and you are not god, pick up the dang phone. I know that struck home because of where I live, it was definitely not a compliment but he did call I think to my Rheum and they worked things out.
I often think pride sometimes gets in the way of common sense with most everyone, including me. Sometimes it seems there’s politics at play in every profession. Wouldn’t it be nice if, as a human race, we could lay all that aside and just do what’s right? Sorry, got on a tangent. I really do hope that members can help you out!
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lol, yes I agree. Lots of personalities/egos to navigate in medicine. 
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Did a little housekeeping this morning and moved your topic to under the General tab. Hopefully more members will respond.
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Thank you!
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