spent the evening in the ER , was told that the vein between my 2 (of 3 ) clippings" has expanded " , they scheduled me with a new nero surgeon (as mine no longer works in this state ) on thurs day . trying to not freak out but ...think (??) a fusiform aneurysm is what they were talking about .. ??? any ideas , or knowledge of how they might treat this would be so WONDERFUL !!
Hi Cathy I was diagnosed with a fusiform 10 x 8mm had Stent placed 3yrs ago it was still big so last year in March had the PED and in October had Angiogram and the doctor said it shrunk. The doctor who did the 2nd is at Stony Brook Medical Center Dr. Fiorella
Fusiform annys are the least likely to rupture, I have one we are just watching! Hope that gives you a bit of peace.
I had an aneurysm , small 3.5 mm and I operated through endovascular procedure, using a Pipeline embolization device (PED) , and I am OK, I am 47, and my procedure was done 2 years ago. Through my readings I know this kind of treatment is good for your kind of fusiform aneurysm. Talk to an interventional radiologist because there are pros-cons with this procedure. Please Check these pieces of information:
I spent a year, until April 2014, researching aneurysms, specifically fusiform aneurysms. The "Fred" system was being tested throughout the country. The testing was being done on fairly simplistic fusiform aneurysms as compared to those that were in more difficult to reach in areas of the brain. I don't know if testing is complete yet, but the results at that time were superb if not to say phenomenal. This surgery uses a double stent and is specifically designed for fusiform aneurysms. My wife needed a compassionate release, at that time, to have the surgery done. Unfortunately circumventing beaurocracy takes time which, due to the aneurysm growth, my wife did not have. If I can be of any help email me at ■■■■■■■■■■■■■■■■■■■.
I have a fusiform aneurysm. I was told that neither coiling, stenting or clipping would work. My only procedure would be the pipeline flow device due to the wide neck. I am a watch and wait person, but have been told I need to seriously consider having it fixed. I am gathering cds as requested by the specialist in San Francisco. I like my usual neurosurgeon, but would prefer to stay watch and wait, so i am getting a second opinion. Good luck.
I had a fusiform aneurysm that was stented and coiled in 2009. This was before PED was approved in the USA. My Dr recommended the stenting and coiling but wasn’t sure it would be a permanent solution. He indicated I might need The PED eventually. After the procedure and my follow up angiogram he told me things went better than expected and my chances of havering problems were close to zero. If possible see Dr Riina in NYC at NYU.
thank you so much for everyone's feed back , has anyone had recoiling or any other procedures done once the stent was placed ? the little bit of info I have found so far talks about 30-40 % needed more coiling's . ???
of course when looking on the internet you always find the scary stuff first , talking about bypass in the brain ... with the stents or PED do you have to take a blood thinner , and if so for how long ??
I had a stent with coils put in a 9mm ten years ago…endovascular. Took care of that one. No biggie. I have a 3 mm one they have been watching since then…no change. Yes, I took blood thinners the week before and several weeks after. Am on a 350mg aspirin daily as maintenance. Good luck, Cathy…mine was done in Buffalo…the best! doc. I wish you all the best!
I wouldnt worry too much about statistics, they dont mean much unless you need recoiling in the future. with stents they normally put you on blood thinners to stop clots forming in the stent until it has healed over but this may depend on the type of stent? I was put on plavix a week before stent/coiling and stayed on it for 6 months until my follow up angio was scheduled. Im still on aspirin for life. the blood thinners like plavix are usually a temporary thing.
AFAIK, recoiling is more common when the coiling was done after a rupture because the blood can make them compact. Like I said, the only statistics that matter are the ones that affect you personally, and Id say recoiling isnt much different to the original coiling so it is less invasive than clipping and quicker to recover from. But I wouldnt read up too much and just wait to see what the neuro has to say about it first. The internet has lots of random advice but neuros can put the information into perspective and you wont really know what you're dealing with until you talk to them.
cathy propp said:
thank you so much for everyone's feed back , has anyone had recoiling or any other procedures done once the stent was placed ? the little bit of info I have found so far talks about 30-40 % needed more coiling's . ???
of course when looking on the internet you always find the scary stuff first , talking about bypass in the brain ... with the stents or PED do you have to take a blood thinner , and if so for how long ??
Hello Cathy,
I don't remember the size of my aneurysm. I was the fourth person to get the new FDA approved PED in
the brain at John Hopkins, Dr. Alexander Coon, Nov. 2011. this past May I went for my two year angio and the aneurysm has shrunk and completely gone. I'm on 325 mg aspirin for life and lipitor 40 mg. I was told that this was my only option.
Hi, Cathy,
I had two PED's put in place with the fusiform aneurysm in my RICA in July 2012. Angio last April showed it's closed up although endovascular doc says RICA will always be a little mishapen. C'est le vie: he's not worried nor am I!
I’m in the wait and watch category…but, Dr. Robert Solomon Columbian Presbyterian, is excellent, as is Dr. Howard Riina, NYU Langone…