Hi all it's been a while since my last post, so much going on, sold home, moved to a senior community, plus night aster night and now even days of this suffering head pain.
It will be 4 years in October and have been to Philly in December 2015 to a neuro-ophthalmologist and still no answers as to why the pain!! Now it is not just at night but during the day also. It is 3:20am and can't sleep because of severe pain in my surgery area and now having severe neck, shoulder neck and back pain and take fiorcet when it gets real bad but little affect and it upsets my stomach. I am so tired of not being able to live my life, this is not living it is only quantity of life.
My big problem is with drugs....I am highly allergic to all NSAIDs, aspirin, and scared to death of Botox because of the sever side affects they advertise!!
I am so tired of not being able to live my life, this is not living it is only quantity of life. I can't get into see my neurosurgeon until September and going to the ER is useless as they just pump you full of drugs that make you sicker.
I have 3 more Annie's they are watching and I also suffer from Glaucoma which my opthalmologist feels the one on my ophthalmic artery is part of the problem.
Please does anyone else suffer with this and have any suggestions for help and where??
I have suffered from "headaches" since my surgery and it is well controlled by my neurologist. Your issues seem more severe. I read you have seen other doctors but do you have a regular neurologist for long term care? Since they all have a different area of expertise you may want to call your neurological group to get a recommendation based on your concerns. I also know there are neuro's who specialize in back and neck pain that are neurologically related. When you see your neurosurgeon in September he/she may be able to recommend next steps, don't leave until you get direction you feel good about.
Irene, I have to loudly second Carol, see a neurologist. Mine has been more than willing to work with me and find out what helps and doesn’t. There are many options out there. I did recently find out that photophobia can make astigmatism worse, who knew?
Hi Carol an Moltroub, Thank you for your replies and I have seen a neurologist but all she wants to do is shoot my head full of Botox!!! She did not even exam me when I saw her just went over the written report from my surgeon who keeps telling me it's trigeminal neuralgia when in fact an ER doctor and neuro-ohpthalmologist in Philadelphia diagnosed me with Temporal Arteritis which must be treated with prednisone. The prednisone takes away the pain and I don't get any severe side affects but these doctors don't want to use the prednisone they keep pushing all the new drugs on me which I cannot take. Damned if you do and if you don't!! Going to see rheumatology today hoping they can give me some answers.
Irene, I'm sorry it took me so long to read this. I have visitors for the month and do not get on the computer as much while they are here. I feel you should see another one, and if you don't like them pick another. When I first moved to Tampa I made appointments with 3 neurologists. I went to all three and then picked the one I liked best. I told family I was "interviewing" neurologists, which is exactly how it should be. You are going to have a long term relationship with them so you should make sure you get one you like, trust and feel they listed to you. Carol
Irene Rush said:
Hi Carol an Moltroub, Thank you for your replies and I have seen a neurologist but all she wants to do is shoot my head full of Botox!!! She did not even exam me when I saw her just went over the written report from my surgeon who keeps telling me it's trigeminal neuralgia when in fact an ER doctor and neuro-ohpthalmologist in Philadelphia diagnosed me with Temporal Arteritis which must be treated with prednisone. The prednisone takes away the pain and I don't get any severe side affects but these doctors don't want to use the prednisone they keep pushing all the new drugs on me which I cannot take. Damned if you do and if you don't!! Going to see rheumatology today hoping they can give me some answers.
Thank you Carol and I never really thought of it that way!! You see 2 heads are always better than one!!!
I and seen another one when we were in the Poconos and didn't like him either, he just kept prescribing drugs that made me feel worse. I will be searching our health plan for neurologist now.
I was wondering four years after clipping still head pain! That is scary, as the clipping is suppose to make the aneurysm go away. Have these symptoms got better ?