Botox for jaw nerve pain

General
1

Has anyone tried Botox for nerve pain? This is another option for the nerve pain in my jaw that was damaged during the craniotomy.

Would love to hear from anyone who has tried something similar and how many shots did it take and how do the find the offensive nerve.

Thanks!

2

Laura, I didn’t have Botox treatment for nerve pain in the jaw, but I have been having treatments for migraines. It has been a godsend. Takes 30 shots for the migraines.
~ Carol

3

Carol, I think this is fascinating. How did they know where to do the injections?

Laura

4

Laura,
They do the injections across the forehead, front top of head, down the sides, back of skull and a few in the neck. It works really well. I had daily migraines after my surgery and since July I have had 2 migraines that were pretty bad and about 3 weeks of low grade headaches. This happened the end of November when I had my eyesight go triple. Vision was double in each individual eye causing triple vision with both eyes open. I know a few members on here have had Botox treatments for eye nerves. If this is something your doctor is recommending it may be worth trying it.
~ Carol

5

Hi Laura...my trigeminal nerve was effected which includes the jaw area...I didn't know that Botox would help...however, at this point...I just want to stay away from another med...and see if any of this improves...keep us posted on your results...and a Happy New Year ... ~ Colleen

6

Carol,

Who did the injections for you? It was the ENT that suggested it, the neurologist wanted to wait and see how effective the medication was.

Happy New Year!

7

Happy New Year to you too!

After three years we think that the damaged trigeminal nerve is one of the triggers for my migraines. I did notice that there is a pressure point wear my eye glasses rest above my right ear that gets really sore (next to the craniotomy site) I am so ready to put this all behind me.

I will keep you posted.

8

My neurologist did the injections, Laura. I go in every 3 months. They sting but they are worth it. It takes her about 5 min total. :)

~ Carol

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9

I have some of the scar tissue above the right ear that gets tender too. I have to remind my neurologist next time to watch the scar when she does the injections. last time she hit it a few times. My muscle isn't sore any longer though, but cannot open my mouth all the way and need to make a dentist appointment and I have been putting it off.

I hope they get you more comfortable soon, Laura.

~ Carol