Balance issues 5 months after craniotomy for unruptured Ann

My clipping surgery was 5 months ago. I am healing well and have been to PT for vestibular balance issues. I have faithfully done the eye exercises and balance exercises. I can go for several days with no issues but then out of nowhere it seems I have several days with more balance issues. I know there are more of you out there suffering from balance issues as well. Can anyone tell me if you had this issue where it comes and goes? If anybody had surgery quite a number of years ago I would really like to know if they’re still having balance issues. My aneurysm was pressing against the nerve responsible for balance and hearing. I’m completely deaf in my left ear because of this and I don’t anticipate it will ever come back. My audiologist agrees with this assessment. I would sincerely like to hear from someone else who has been through this similar situation.

Hi pchefdi,

Where did you have your aneurysm? I had a rupture by vertebral/PICA where the bleed resulted in a minor stroke and a disorder called Central Vestibulopathy. My Annie-versary was 4 years ago. I have single sided hearing loss at mid range in the right ear as well as 40% loss in vestibular function. I also have double vision and jerky eyes. To answer your question, it took me about 1.5 years to recover my balance. I bet you get tired walking up the stairs. With balance problems, I would have a wobble at times (like a new born learning how to walk for the first time). What really helped in accelerating balance problems is “hard core” cardiovascular exercise like a stationary bike after the home Neuro-PT. What you experience was similar in my case. Some days are completely fine but other days, the balance is more difficult. But, overtime, it did get better. I also suffer from chronic vertigo but it has finally gotten better at Year 3.5. My advice is keeping a journal log and keep measuring your improvement as you progress with the Neuro-PT exercises. Then, take challenge tests in hiking trails where balance is needed. Best of luck

My Annie was deep in the left side of my head. The neurosurgeon had a difficult time reaching it but thank God he did. Subsequent MRI has shown that the aneurysm is clotted since no more bloodflow going to it. Thankfully I never had a rupture. I have been trying to figure out a word to describe how I feel when I get these balance issues. It’s almost like my head is “full”. I should say I am a 72-year-old female who has always been very active. I have been a walker for 35 years. I would not be able to do extensive cardio on the bike any longer. As I said I am faithfully doing my exercises and balancing on a hard piece of foam while I stand with my eyes closed. I appreciate your idea about keeping a journal. I have no problem walking upstairs and do not get tired. A few questions… How old are you? Also how did they establish that you have a 40% loss in vestibular function? Upon completing my PT, I was not given a percentage of any kind. They just told me I had improved drastically from my first visit. Thankfully I have no problem with my eyes at all.

When I started to have issues with my balance, dizziness, and ringing in the ear, I was referred to Ear, Nose Throat. They evaluated both my auditory (hearing) and vestibular functions. In this test, they found that I have hearing loss in mid range in my right ear as well as 40% vestibular loss in the right ear. The vestibular test is putting a device in the ear and pressure is added. Then, vestibular function is tested. My balance and gait was bad in the first year and I had issues walking up the stairs. It was exhausting. This issue is now resolved.The Neuro-PT was very helpful but just took time. I am in my early 50s.

thank you for getting back to me.

Hi, I have vestibular hyperactivity in one of my ears. I found through keeping a journal that stress, drops in air pressure, and foods high in sodium or stimulants like caffeine, sugar, chocolate always set me off and make me dizzy. I go to a vestibular PT and what helps is the core work, stretching the inner muscle under the skull atop the neck bones, aligning the neck mannually, and my PT said cardio would help me get over the hump.