Hello
I am three months post an urgent coil and web device procedure for a Right MCA anuerysm. It was felt I had a sentinal bleed.
I have had Left arm and leg heaviness but normal strength since. Also fatigue +++ No one seemed concerned as no evidence of stroke.
Has anyone experienced anything similar? Starting to feel anxious that I am an attention seeker.
Thank you
Welcome and thanks for starting a new topic. For many of us, after a procedure we often feel fatigued for months. Although some members can snap back within a few weeks, some do struggle. Basic things to look at would be proper hydration, diet and exercise.
If the specialists have decided you’ve not had a stroke, have they looked at a vascular cause or maybe a pinched nerve in the neck? I’ve got a vertebrae that has liked to do interesting things to my right hand and arm when it pinches that nerve. Even here in the States, we often find ourselves needing a referral to a specialist. 2-3 years ago, I buggered my neck and shoulder. I think it went PCP to Ortho had an X-ray he wanted me to start taking shots said nothing wrong with the shoulder, I may have had an appointment with my NP for the neurologist, went to my NP for my neurosurgeon. She had to order a nerve conduction study in order to get approval from my insurance for a MRI. NCS suggested pinched nerve. I can honestly share my experience with those tests, the first one I had was for my lower back where I’ve had my fusion. It was fine, pain was more than tolerable. The Fellow Resident, Resident Fellow or is it just Fellow? She would do a part of it starting at my hand, walk out and speak to the Dr., come back and do another part, walk out. At one point I told her when she came back in that I was really happy she wasn’t wearing black with a leather crop in her hand. Pinched nerve, three torn ligaments or tendons, I forget which, maybe both. Sent to another orthopedic surgeon who said each thing by themselves was fixable separately, he didn’t know what to do for all of it together. Didn’t suggest a course of action. My NP sent orders for PT, Neurosurgeon knows I’d rather not have any more surgeries of any kind.
I hope you get to feeling better. Please let us know what your doctor says.
Hi. I get leg heaviness but it is not constant. Explored all things neuro (I think) but no answer. I also get a weird floaty/disconnected feeling in leg and sometimes my arm as well (typically simultaneously). Neurosurgeon says not related. Neurology ruled out their stuff. I also have autoimmune issues so rheumatology thinks it might be a rare type of neuropathy but neuros are uncommitted. Everyone just points in the direction of a different specialty. It happens very rarely now so I ignore it. However, I don’t think that’s necessarily smart, I’m just very very tired of it all and eventually put my mental health first. I hope you have better luck getting to the bottom of it. One specialist (that i liked a lot) said that the end of the day, we still aren’t entirely clear of the effects of “artifacts” in the brain.
Sorry, I don’t think this is much help. I hope you get answers, and if you do, could you please let me know? I’d appreciate a little direction.
Judi
Having an autoimmune disorder is like throwing a monkey wrench into the works. Seems everyone wants to point at it as the cause when it’s completely something else. It’s extremely frustrating. I hope you eventually stumble on to the correct specialist. Maybe someone will take some images of your spine to rule out any nerve issues. Images are much easier to tolerate than nerve conduction studies in my experience.
I’ve been quite thoroughly scanned so no complaints there. I’ve had spinal imaging, brain imaging, another angiogram, eeg and emg’s, and cardiac studies (bubble echos, a tte, heart monitor etc). There were a few other possible fishing expeditions including a punch biopsy and one other thing someone wrote on the back of a business card that I’ve filed away for the future after which I said no thanks, I quit. The chance of whatever it is being life threatening at this point is unlikely so I just mentally log it when it happens and go about my day. I will say along the way I went from 81mg aspririn per day (post flow diversion), to 162mg (post bubble echo), and now 325mg total per day (post angiogram). However, @lulu33 needs to pursue it as necessary to reach the same level of comfort and acceptance. I am grateful I was taken seriously by my GP who involved the necessary specialists to rule out whatever came to their mind. I now chock it up to brain artifacts (love that phrasing) or autoimmune oddities, but I’m ok with both. Lulu33, I hope you get more clarity but if not, I hope you get peace of mind. Keep asking questions!
Thank you for thr reply, my follow up is in a few weeks and I feel no rush to see anyone beforehand. Unless it got worse. I had previously been told it may be due to changes in blood flow.
I do like the honesty of not knowing the extent of the effect of coils in a brain. I could sit very comfortably if I received this.
I will update the outcome.
I appreciate your answers and the time it takes
Thank you!
My goodness you have a great GP! I call mine my Gatekeeper since she’s always sending me to a specialist it seems.
Happy you’ll update us, it’s how we all learn! Remember to rest as needed and stay hydrated…