Another denial and MRA

Good Morning Rick! How exciting about your writing class! And working 20 hours a week sounds wonderful, how’s that going for you?

Many of us worry about angiograms, I think thats pretty par for us. The unknowing can get to us and even more if we have an allergy to the contrast. Please remember to hydrate well.

When I had my last angiogram they had to use the machine that checks the artery to see if they could use it. Fortunately for me they could. I forget what that machine is called, I think it’s some type of ultrasound. It’s a small box thingamajig, not sure if I was ever told the name of it, just that they used it to check my artery. They used it when I was in NSICU several times for whatever reason they decided to put in a central line and a a-line. Maybe @oct20 knows, she knows quite a bit about things like that.

The only way I know to be “present” is using relaxation breathing and telling yourself where you are now. It’s something I used with clients when they would have flashbacks. What is your therapist telling you to do to be present? Has she given you skills to learn to combat depression?

Wishing you the best for tomorrow, I’ll keep you in my thoughts. Remember to hydrate really well today it helps when the IV goes in.

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Work is always the same generally. Accept I now have a new boss who is younger than I am and has three kids and married. She has a lot going on and a stressful job. And gets migraines and sees a neurologist for them. So we talk about medical stuff. I like her and am glad she got the position. Every time I go back to work (as I am seasonal) I realize how much I can’t handle what I used to do before the aneurysm. But I would think that’s normal.

I haven’t told them about my trial for disability but I would guess that upper management would think I’d be trying to do something. HR used to check in but they kind of just let it go unless I bring something up. I think they have bigger things to worry about over my 20 hours a week practically minimum wage job. But I am happy to go in and still be part of the team.

As for the therapy. I am not sure what he has said about being more present. I don’t know if I just can’t remember but nothing seems to stick out to me right now.

Thanks for the feedback as always

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@Moltroub

I think it is a small ultrasound device with a probe that can measure the size of the artery, it is similar to the ultrasound device that the OB Gyn uses on pregnant women to check the placenta, amnion fluid and the size of the baby’s head and the length of the spine.

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Here it is Sunday 7 pm. My instructions say that the evening before (4-7) which is right now an ambulatory surgery nurse will call to go over final instructions and give me my absolute arrival time. Of course it’s 7 and they haven’t called.

Also since I am allergic to the contrast they have issued 2 meds for me to take throughout the night. And one says on the bottle take with food. And I looked online and said take with food. Of course my papers and the nurses said don’t eat or drink past midnight .. only little sips of water with these pre meds and a couple morning meds I have to take before I get to the hospital.

And of course it says not to bring meds with me but they have instructed me to bring my last premed pills as we don’t know what time for sure and they have to be closer to the procedure…

Definitely not helping the stress tonight

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@R1ck hope you get some sleep and it goes smoothly tomorrow.

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Thank you!

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Hi @R1ck -

We’ve been thinking of you today, and hoping all went well. When YOU are settled in and feeling up to it, please let us know how things went!

Fin Whale Fan :whale:

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Thank you all!

So I am home, so that’s a good sign.

My first angiogram was my brain surgeon and went through my wrist. I also almost had a heart attack that day and was in the hospital for days after as my potassium crashed.

2nd angiogram is with my new surgeon and that went through my groin.

Today got there, wasn’t sure if it was wrist or groin. First in the pre-op area a friend of mine was across the hall waiting. I didn’t get to see him but I have been texting him. He has a condition called Mogad which is like MS. He got released before I did today, but is currently in a nursing home.

As for me, it was supposed to start at 11:30, didn’t until 1:30. The surgeon had a job before me that took longer than expected.

But as I waited, I saw my neurologist this morning before the angiogram as he doesn’t have an office anymore and only works here part time. But he reassured me that my issues are the common for aneurysm survivors. I wish he still had an office.

He told me that he would testify for my trial if I need him to. Was good to see him.

The angiogram, we started with trying to go through the wrist but it was too painful and we didn’t have luck so ended up going through the groin, which is bigger recovery. He was happy with the pics though and I will see him in a couple weeks to go over what’s next.

I am home now. Soar and tired but glad to be home. Have to take it easy all week. Can go back to work and the gym starting next Monday. I have writing group that night too. So I will just take it easy this week and try to relax.

Thanks again all

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I think my dog was happy I got home tonight

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Oh my gosh Rick, he’s adorable! I imagine he makes a great cuddle buddy. Glad you’re home safe and sound!

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Thank you! Retired greyhound

Gia! She’s a good girl!

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My apologies! She’s a beautiful girl! We have a basket for the girls toys, Nina won’t get one out, Ohana will dig to the bottom for one. I’ve never been able to teach her to put them back. She does like the Find It game. I take the toy she likes that day and hide it. Because I couldn’t speak really well when we first got her I’d raise both arms straight up and say “find it”, and off she’d race going through the house until she finds it, brings it back and is ready to do it again. I discovered last year when I tore some ligaments and tendons in my shoulder along with pinching a nerve that she won’t find it if I don’t raise both arms.

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It’s crazy how smart they are

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Yes sir it is! Ohana is one of the reasons I had my second repair. When we first adopted her, I was having migraines a lot, every day and seemingly all day and night. Except when she would lay behind me and put her head on my neck, they’d stop! So me, with a muddled brain started pressing on my carotid artery and the migraines would subside a lot. Told my Neurosurgeon who said something like “Oh my goodness, don’t do that!” Got another angiogram the next week and the week after that more coils.:joy:. Don’t ever press on your carotid artery unless you’re taking your pulse.

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So I’m waiting to go see my brain surgeon to go over the results of the recent angiogram and to see what’s next.

My writing class is done and I never did mention it in therapy I guess because we have so much else to cover. I have gotten to know the teacher pretty good and have shared a lot with him about myself. He is a retired English teacher with a doctorate and lost his wife in the last year. So the class was kind of therapy for both of us.

This past weekend my father has been on me about straightening out the basement, which is my fault that it isn’t. And I recently got a deconstructed bookshelf from a friend that I want to put my records on and organize my room. My dad got mad because he thinks I spend too much $ on records which is true but I look at it as it’d be a punishment to me if I couldn’t do that. I don’t know if that’s right or wrong being that I am waiting to hear back from this damn court case.

While I was sorting through some papers I discovered my schedule of work that I was supposed to be doing when my brain ruptured and I went back and reviewed the timeline and how good of a job I was doing when that all happened. I didn’t tell my parents this but it made me extremely depressed. I told my therapist and I cried more at this weeks appointment then I have at any other appointment.

We also have talked about past relationships I have and he told me I am lonely which I know I am. But I can’t do anything about it right now. I am broke financially and mentally. I have to live with my parents who are in their 70s as I don’t have a choice. So women who are in their 40s aren’t looking to date someone like me. So yes, I am depressed.

Another friend told me I should look into marijuana now that it’s legal here and the big fad. I have used it in the past. But I did bring it up to therapy. And he didn’t say yes or no. But I determined that I don’t want it. Like I don’t want to drink anymore. I said what if I quit taking all my meds. To me it’s along the same lines. He said people stop taking certain meds but not all of them. I know if I did that I would be back in the hospital

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It’s a viscous circle we can get ourselves into, isn’t it? When do you see your surgeon?

We know a guy that resides with his mother, his dad passed away when he was a teen. He has a girlfriend and is in his 40’s so I’m not sure living with your parents is exactly it. To my thinking, it’s more of how we feel ourselves, so it’s all based on self esteem. It’s harder and a heck of a lot more work to have high self esteem when we get so many blows after a rupture. In the end, we have to figure out our self esteem is our responsibility and get back up on that horse. Are you working on yours?

I feel better about myself when I am able to complete something on my chore list. Sounds like yours is getting the basement done. I suggest taking a page out of the CBT book and do 5 minutes, and see if you don’t get caught up in finishing a section. Once I can get started, I like to keep going so it’s worked for me. Maybe it will work for you as well, worth a try.

When we moved, I found a plethora of things from work, most of course I had to shred due to confidentiality issues and I know how difficult it can be looking back. I kept all those tablets because my boss told me to, which was dumb as heck. Fortunately I’d already started the practice of allowing myself 15 minutes of acknowledging the changes and being on my pity pot. That helped a lot as did setting a time for how long I would shred. The shredder hurt my brain anyways so I had to use ear protection.

Personally I don’t smoke marijuana, I think my neurosurgeon would not take it well. After all, we have to limit our alcohol after a rupture and I’m allergic to marijuana. At least the stuff they have here in NC, which was a handy way to know I had to send caregivers for a drug test😂. I think but don’t know, that marijuana being a depressant, a stimulant and a hallucinogenic would muck up my neurotransmitters and that wouldn’t be good for me at all. However, there are some members who have found THC helps them. I couldn’t find a recent study on marijuana use in adults after SAH. I found this for what it’s worth https://www.dea.gov/sites/default/files/2020-06/Marijuana-Cannabis-2020_0.pdf. Maybe there’s something on marijuana use after TBI since that’s a bigger group of folks than the SAH group. I do know that caregivers who suffered from depression were told not to use alcohol or marijuana especially if they were on an antidepressant from my days of working.

Something I don’t quite understand Rick, so I need to ask. If you’re strapped for money because of your reduced hours and you know you’re spending too much money on records, have you considered setting a limit on how many you purchase on a monthly basis? You might be able to come up with a smaller number, say one or two a month off your need to buy list. Some albums can fetch pretty high prices while others are dirt cheap. I’ve seen some at yard and estate sales that were dirt cheap and just needed a good cleaning. Some covers were in excellent shape whilst others weren’t holding together at all. I no longer collect records, but old hand tools, some might call me a hoarder. I only want users so not really into collectibles. I keep a list of which ones I want and usually stick to those with an amount I’m willing to spend which isn’t much. I hint all the time I want to have my allowance back, but it does no good. BH says just buy it, so it’s taken part of the fun out of it. Yes, we need to have a nice sit down chat. Half the fun for me is the hunt so I’m not going to Jim Bode for them😂. Sometimes I find something so cool it immediately goes to the top of the list! Think seriously about how much you want for pocket money, how much you’re wanting to spend an albums and see if you can combine the two. There’s no shame in setting up a budget, no matter how much money you bring home, it’s really an adult thing to do, isn’t it? I just called my pocket money, my allowance. Co-Workers who didn’t set up a monthly budget thought it dumb as all get out. However, those who did have a budget for their needs and wants, well they definitely understood and thought it funny.

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So I saw my surgeons assistant today. As for that…She said they were very happy with my recent angiogram and as long as future MRAs continue to look good and nothing else comes up I can wait 3 years for another angiogram. Which was a big relief and good news for us. I should be happy about the news and I am. But I’m tired and my blood pressure is up and I’m just trying to relax…

As for the marijuana, we didn’t talk about it today. She asked me about smoking and I said I smoked about 20 years ago but sometimes i feel like I could have one and she explained why that would be bad for me to do.

As for the record thing, what you came up with the limit and your ideas are great. I don’t know if it’s because I have an addictive personality or what it is.

As for the relationship thing, along with me finding my work notes sort of goes together… At the time before I ruptured, my coworker that I was with was so negative and draining. And I had been seeing a girl that girl but she disappeared from me and I had no idea what was going on there when I was traveling for work at the time. Turns out the girl had a drug problem that I didn’t know about. I saw some texts and made me mad that she is trying to get back in my life now, when she was so evil back then. I needed her in my life these last three years and she was gone at the most important times. And so between that and my rupture, since I can’t work full time and I live with my parents, I cannot offer anything a woman in their 40s is looking for. I am talking with my therapist about these things. My mother thinks I need to be on an antidepressant…

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Great news about the angiogram. It’s is a relief that ours doesn’t need checked but through imaging in my book. Sounds like you’re doing a lot of the right things, much better than I am. Big kudos!

You could always send a message through your portal on the marijuana if it’s a question you want answered.

Glad I could be of help on the records. I have a lot of tools, I really love the old ones. There’s the issue of space and cost. The ones on my list now are fairly expensive to my budgeting allotment. Once I get my shop organized, I’ll know if I have room for them or not. It’s really satisfying to me to be able to save up for the big ticket items and then get to use them.

I also started practicing the five minute to get started, (from CBT skill set) it can be hard for me. Yesterday I had a plan to work some in the yard, needed the tractor, forgot the one personnel door deadbolt wasn’t working with the key. I spent a good bit of time in the shop looking for some graphite. Got sidetracked and started putting stuff in the place I want it, while also looking for two very important bolts I need on my very old hand plane. I cannot remember where I put them, somewhere safe but heck if I can remember. An hour later. I went to get some water and found the graphite! Fixed the door and forgot about getting the tractor. Fortunately today is another day!

I’m in the group that believes there is someone out there for everyone. Just keep working on increasing your self esteem. Don’t ever give up on yourself!

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@R1ck I am with @Moltroub on this one. I thought of you when I read your post after watching this yesterday Jill Bolte Taylor on Diary of a CEO

Please take a watch and listen — JBT may be who you need to hear at the moment. Virtual hugs :hugs:

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