Hopefully, I will never need to find out how good Dr. Gerwirtz is!
For more experiences with the pipeline embolization device (PED) which is one of the flow diverters in the market go to the group in this web page:
http://www.bafsupport.org/group/pipeline-embolization-device-ped
Good luck! and take care
I too had to have a ruptured coiled aneurysm clipped. You can read about it on my page if you want. Is a flow diverter like a bypass? Anyway, we all wish you the best!
Hello,
I too had to have a second procedure, 6months following my original. Albeit, not like yours. Following my 1st, my Doc saw another anyeuresm right beside my original. He said that it sometimes happens. He compared it too an earthquake, and that the 2nd one was aftershock from the 1st. The second coiling went fine. Since then, all has been great & it’s almost 4yrs .
I hope all goes well with your procedure. Please have faith & understand, this too shall pass.
Best of luck & God Bless!
Daryl
My wife had a 6mm rupture on the right posterior communicating artery. It was coiled and required additional coiling at 6 months. The first procedure was to rescue her life. The procedure 6 months later was to add coils because of some compacting, but the whole visit was very simple. (It was not a repeat of original seven-week ordeal.) She was kept in CCU overnight, and the next morning she got dressed in her own clothes and we left. She had a checkup at 18 months, and everything was fine. She is to have another one this summer, at the 3.5 year mark.
I am actually surprised sometimes with the lack of information some are given. Our doctors did tell us this could happen. I can't remember us having any total surprises because they kept us so well informed. This was at Swedish Hospital in Denver. Dr. Elliot was in charge, and Dr. Bellon did the coiling. Obviously, we appreciate them very much.
Hi Margie,
Sorry to hear that your review did not go as you were expecting it to.
Although my circumstances are not the same I had treatment for a 12mm unruptured aneurysm with a pipeline embolization device (PED) in the UK. Treatment was less invasive and gave a higher prospect of complete occlusion of the aneurysm. The device was inserted via the groin and recovery was much shorter. I have heard that coiling does sometimes have to repeated. I chose the flow divertor and it seems to have done the job for me. I have another 7mm aneurysm pending treatment and if the use of a PED is an option again I would take it.
Good Luck for the future and sending you best wishes , Marina
Marjie- I had a rupture on 120912. In August 2013 the coils in the ruptured aneurysm had compacted and i had to have more added. The coils in the unruptured one had not done anything. They were still good. so i had more added. i went back for checkups at 6 mos and 1 year. there were no changes after that. all has looked good. My next visit is in July 2015. I may have a warped sens of humor. When i had to go have more added i just looked at it like car mainetnance. At 50,000 miles you have to have some maintenance done. so this was just my brain maintenance. Wishing you the very best. keep us posted. ~myra
Mine was 3 yrs. ago. Also had ruptured anni/SAH/stroke. Had coiling done. Was told at 6 mos. check up my coils were a little compacted but would wait and see. At 1 yr, had my angiogram and all was well, my coils were stable. Had to go every year for MRI. Good luck to u. I will pray for u.
I think Jen has given you some great in put.
I went to Boston, Beth Israel and had Dr. Chris Ogilvy to my clipping and he has been great. He also is the founder of Annie's so he is the best in Boston. He will give you the best care and will come up with the best plan for you. I have the number if you ever need it..
Not sure how far you are to Boston but I'm 3 hrs away and wouldn't of gone any where else...
Sorry to hear what your going through and my heart go's out to you...keep in touch with us and were all here for you...
Lisa
Nov. Will be three yrs. since my rupture. At that time they found four more. So in 3 yrs I’ve had 4 Annie’s worked on. Thought I was done. Went for check up they found another. So July the 5th will be coiled. Ya just never know. Just keep faith in god, n try to keep your spirits up. Because we did SURVIVE n r hear talking to each other
I’m sorry to hear your going through this again . my bleed was 17 years ago I’ve had a few really bad head aches since and I think oh no not again . we’ve all been through enough . my prayers go out to you .
So sorry Marjie! That's the risks we all go through even the treated unruptured ones. I have my angiogram this May...my neurosurgeon will check to see if my treated coiled unruptured aneurysm done a year ago needs recoiling as well.
Why aren't you sure whether your aneurysm grew or the coils compacted? You always need to be thouroughly 100% sure what's going on with you. Be on top of it!
You will be in my prayers! Hang in there, you went through it once (mind you) with a rupture, but now its only to recoil which I have learned its all you will ever need after the second recoil.
I know all the anxiety and fears creep back to face another surgery, but you have a better control of yourself now. Keep us posted
feel blessed that it was found on time . both my hubby and I are survivors but his Annie ruptured during coiling’. he had a major stroke which left him disabled , unexplained breathing failure and the rest is just horrible multiple medical problems. good luck and we will keep u in prayers
sorry to hear your mri results werent great. 6 months after my rupture I went back in to have another annie stented and coiled. Im guessing your flow diverter procedure will be similar to stenting and may only be an overnight stay in hospital this time. At the time I was just eager to get it out of the way so I didnt have to worry about that second one rupturing since it was a similar size to the one that ruptured. Before you know it, it will be all over with and it's good with scans that they can pick up on these things instead of having another rupture. Good luck and try to stay calm. You will be knocked out and then when you wake up it's all over. If you can survive a rupture and everything that brings with it, you will do fine :)
There Marjie,
In 2012 I had a Pipeline Embolization Device implant. I was 66 at the time. This was done in Jan. of that year. I June of 2012, I went in for my six month check up. The first one had not done it's job. A few days later, I had my second implant done. Ten days later I went blind in my left eye.I went back in to the hospital and they did a catscan and didn't find anything. The put me in the hospital over night. My surgeon came in and asked me what was wrong. I told him what had happened the night before. He did an Angiogram and we found out that my Aneurysm had shrunk and was gone.
My Aneurysm had been in the cavity where all the nerves and blood supply is for the eye and face are. I had been having a few problems with my left eye ( double vision).
My Surgeon is at Kansas University Medical Hospital. His name is Dr. Koji Ebersole.
When it is time for your implant do not be afraid. There is very little pain. It is done through the groin. You will have some pain ( more like sore), it won't last long. I hope that this will help!
Should have said" Hi Marjie".
Hi Marjie, at my mom's 3 month check-up (angiogram) they discovered that her coils had compacted. Due to various reasons it was not an option to do additional coiling, so my mom had a Pipeline Embolization Device placed in April of 2014. The procedure went well and everything looked great at her 6 month follow up. Best wishes to you.
Marjie- ruptured and six months later one of the daughters grew behind the original. Had it coiled. Went a few weeks ago and neck is still not closed all the way. Not sure what my doc wants to do in the long run. I have to wait and see what she says at our next visit. I do know she is only going to do MRAs from now on no angiograms -yeah!
I had a daughter aneurysm found at my 6 month check up, following a rupture that was coiled. When the DR told me, it took me a few seconds to grasp that it was not good news. I was feeling good and was hoping to go back to work. Suddenly, I was facing a clipping. Looking backward, I wasted a lot of time in excessive worry. Everything went well and I am now back to work. I hope everything goes well for you, try to stay positive!
I have something dumb to ask. My husband had a bad brain aneurysm on October 6th. They clipped it. We went back in January and then went to a new doctor in February. Two part question. They never told us we had to come back Are we suppose to. And also do any of you guys have to pee like every ten minutes. My husband does and he is always in pain. Please I need help