Good Morning @Jill! A couple of things - to find a good neurosurgeon is to check the recommendations here on this site for anyone who has posted or sometimes we revert to an internet search, perhaps through US News I think it is that rates surgeons and hospitals. Here’s the section for recommendations Recommend Doctor or Clinic - Brain Aneurysm Support Community. Another way is to go to the search feature and type it in
For me, an MRA is better than a CTA. (It’s ok @phoenix33 and I can disagree, we are fast becoming friends). But since everyone’s aneurysm is different, there’s a way to see it. I have a LICA multi-lobed that ruptured and it’s been a bear to get stabilized. But it is now! I’ve had so many CTAs that one of my doctors said I could light up our county. Because of the amount of radiation I’ve been exposed to, my neurosurgeon tries to stay away from them. So everyone has a different story or reason for why their surgeons do what they do.
If you’ve been lurking around the internet, you will see just about everything stating an angiogram is the “gold star” for our surgeons to really see inside our vessels. I didn’t have to have an angiogram prior to my Neurosurgeon putting in a stent this last December as the MRA told her all she needed to know. I did have my six month follow up angiogram on Friday and I won’t have to see her for two years!
Also, like most members here, our neurosurgeons are usually saying our headaches have nothing to do with our aneurysms. The rule I had from my neurosurgeon was if my headache hurt like heck, stiff neck and nausea/vomiting I was to go straight to the ER. The other thing she has drilled into me is to hydrate, hydrate, hydrate. She even shared a story about her husband’s headaches where she asks him how much he has hydrated and if he ate anything. Headaches can be caused by so many different things, I think it’s best to start with the simple things we have control over.
I’m not sure about your Neurosugeon and their team, mine does scheduled procedures on Fridays and her NP is with her through all the procedures and trying to respond to messages sent to them. I used to rely on the triage team, until one of the RNs taught me about the patient portal LOL. I never expect a response back on Fridays, through my portal, but many times I do get one. It’s nerve wracking to remember that we are not their only patient, but we do have to try. You might want to reach out Monday about mid morning if you haven’t heard back from yours.
I would remind you to breathe. If you know how to do relaxation breathing, do it all the time. If you don’t, look it up on the internet. It’s very easy, but you have to do it all the time so it becomes second nature. I’ve been doing it for so many decades I think I probably do it in my sleep. But I can control many things like my BP, stress level, etc. I also love to take a walk about, even if it’s in my yard. If you enjoy a hobby, go to it! Hobbies are a wonderful way to get our mind off our troubles and worries as they give us something that needs our concentration.
All the best and please keep us posted!