hi tina,everything your a describing is making me think back to when i just got out of the hospital, wanting so badly to feel like my old self and being overjoyed that i had survived this horrible period in my life,getting frustrated because i couldnt jump up and go to the park with my family…i was just pooped and my body was yelling it to me loud and clear “TAKE IT EASY WOMAN!” buuuuuuuuuuuuuuuttttt,let me tell ya your brain is a very important & sensitive part of your bodies function and it takes time to heal…it has been thru some trauma…so dont try and rush things thats where the depression and frustration comes in…slow down and take it one day at a time and you will be just fine…on october the 14th it will be one yr that i have been anny free and lovin my life to the fullest,i may not have alot of money to do aloy of things but we do have the most important things inour life and that is tha love of our family and the ability to lov e them back,your gonna be fine hunny just give that brain time to heal…its kinda fragile ya know…lol…good luck sweety and God bless,michelle-n-texas…age 42
please have them give you something for the depression and the pain its been 8 months for me .honey it does get better but dont suffer get something to help you
Very well said, Michelle. It really does take time to heal. By the way, our 1 year anniversary dates are very close. One year ago today, I had my first rupture/leak; my 2nd rupture was on the 15th.
are you on anything for the depression ?please go back to your doctor dont put yourself though that. i was the same way scared cryed didnt want to be alone.but im getting better hey you beat it and you had 5 of them,ive talked to alot of people here that are doing great ,your be ok .we are all here for you .but please call your doctor god bless you linda
you are a kind man r craig looks like you helped her linda
So it seems each day I start to feel a little better. Still taking pain meds. But going outside makes me feel more like I am alive. I’ve been reading other postings noticing that some of my symptoms are shared with others. I guess knowing it’s not “rare” gives me hope that the healing process and the ways to fix me are improving and I can one day be myself again! So glad I found this board!
But one thing I have not read about it hair loss. Most of my hair has fallen out like I am a cancer survivor. I ordered numerous hats, but why is it falling out? My brain doc says it’s due to the exposure to radiation during my surgeries of coiling. But why hasn’t anyone else posted about this?
Well, hope everyone else is recovering and doing well. God bless us, everyone!
God bless Tina!
Janice
Tina…few neuros explain hair loss to patients… out of curiosity, was that info offered upfront…or did you have to ask after you noticed it at home?
The FDA site has a lot of info on rad…and, other websites have lists of the various types of radiography, the rad volume and time staying in our system…
I had so much hair fall out it clogged the drain; w/my loss of vision and cognition I did not notice it… until I was standing in my tub a quarter filled during my shower. Family came and cleaned it out; a friend got a metal mesh cover for the drain, and Drano…
My hair never returned to normal…however, we have those f/up angios…
Aside from all that…tell us about your children; how old they are; how they emotionally reacted to mommy being in the hospital… their recovery? Forgive me if you’ve already told us, and I missed it…
Pat
Now I’m going to have to look things up about hair loss. About 75% of mine is totally gone!
My 9 year old daughter was the one that took it the hardest. She was not allowed to come to the hospital and see me because of her age. So for 16 days she could only talk to me on the phone. Now that I am home, she’s my little shadow and helps as much as possible.
My 14 year old son is a teenager so tries to hide most of his emotions. But when no one is looking, he hugs me, kisses me, and tells me he loves me. It’s awesome. My husband did well in keeping them informed about my recovery. I think that helped.
So far today is not a good day for me. Now I am worried about the hair thing… I know I should be grateful to be here, but I just want some type of hair to grow back I don’t care if it’s the same as before, but just that something grows back! The entire portion of the back of my head is bald.
Well, I have a check up on the 20th. I will say something then. Maybe it’s because I had so many surgeries so close together. Thanks for your answers. Hope things are better for you as well.
God Bless.
Tina, thanks for sharing on your children…your 9 year old may not have taken it the hardest; just possibly not as able “to control / hide it” as your older one.
Please do not overworry; I have two friends who went thru cancer treatment; it took a long time for their hair to re-grow; it did; one is not the “same” as it was; they are still here on earth with us… My hair is not the same as it was; however, it is the most minor concern for me… Then, a dear friend who has never had any med treatments enjoys wearing a wig…
Please take a list of your questions to your appointment; I assume your hubby will be sitting thru that w/you. Ask the md to show you the angios where your aneurysms are located, the names of the arteries/segments…(I can’t remember if you said you’ve been thru all this)
You were blessed that your E/R transferred you quickly to a neuro facility. Did E/R do a CT to determine the transfer? What were your symptoms in addition to the headache? What all happened that morning; i.e. calling your hubby, his getting to the hospital w/you, making arrangements for the kids after school, etc etc… There’s so much more than just what happened to “our” brains…
Wishing you best and God’s blessings to you…
Pat
Hi Tina,
I hope you are recuperating well. It’s a slow process. I think that one thing to keep in mind is to take each day as it comes…like the saying says, ‘one day at a time’. I have some things happening to me, like you: fear, tears, wondering if I’ll ever be the same and if I’m going to have a long life. I think an event like this makes us think about these things. I try to focus on the things I ‘can’ do rather than the things I ‘can’t’. And try to be in the now as much as possible. Although it’s still necessary to plan for the future.
In regards to hair loss, I lost some of my hair too, it’s really thin and what’s growing in is not gray anymore but white! I’ve been told that it’s the stress of the event, surgery, and scans. So hopefully it will grow back in. If not, then I’ll have to save up for a wig I guess. But, I am alive and that’s the main thing. I only have a few deficits right now e.g dizziness, extreme fatigue, sadness, and quite honestly I’m as mad as hell!! LOL. I’d given up drinking, smoking, had a good diet, low cholesterol, but I guess the stress in my life at that time did me in. No one else in my family has had this. Oh gee, I had to be the pioneer!
Anyway, I am very glad I found this site as we don’t seem to have support groups up here in B.C. Canada for this, we have one for strokes, so considering I had that first, then the ruptured aneurysm, I will join that.
Continued success to you. Greet each day as best you can for you’re still here with your family and that’s what matters. Good luck to you Tina!