Thank you for sharing your story. How was your clip surgery? How are you today?
Well, as you know, at least for me; I mentally was never the same. Always waiting for the November MRA. But the ruptured clipping; was scary, I had vasospasms and then I had double vision for about 6 months. But fine; normal, work full time, work out a lot. Especially Yoga, that keeps me grounded, helps with anxiety. But āI waitā. That wonāt go away for me. Even seeing a psychiatrist. You donāt know unless you experience what we went through.
Good morning I am Roscella I would advise you to go to another Doctor Never take only one answer. I am a Brain aneurysm survivor I had 3 brain surgeries. And that was the second Doctor I went to. I will keep you in my prayers.
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Thank you for sharing. I like hearing that poeple do survive. I am sorry you have this but hoping you are thriving now. I did get a appointment next week with another doctor. So I have two lined up. Appreciate you!
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Hi!
Iām in the Philadelphia area as well (up in Berks County but I work in Philly)-I had/have four unruptured aneurysms-all have been treated with flow diverters. I go for my follow up angiogram on Thursday 6/20! Iām going to Reading Hospital and I love and deeply trust my neurosurgeon-Iām happy to share his information if thatās close to you. Iām also happy to answer any questions you have!
I just wanted to let you know itās so ok to be terrified-this is a journey for sure. I also got a second opinion and that was reassuring for me and my family. I had to wait a month last summer as well and that waiting is brutal, so have grace with yourself!
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It is scary. I took up walking as I waited for neurologist appointment and then I was a āwatch and wait ā aneurysm. First neurologist felt it wouldnāt grow. After bad headache while out of town, found anni was growing at a rapid rate. Still waited another month before coiling. So if it is small, donāt be surprised if your treatment consists of every 6 month ultrasounds with an artirogram thrown in occasionally because yes, first neurologist saw that it was growing. This site is the best because these people know and I felt comforted. I will keep you in my thoughts
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Hi Jane. Thank you for you message. It means the world to me. I am actually in the Lehigh Valley. I would love to know what Dr you used as Reading is really not that far. How are you doing health wise? As you back to work. Thinking of you and hoping you are doing great. Thank you again.
Thank you! Your message it so helpful and gives me hope too. I really appreciate you reaching out. I know I need to find patience and clam. Walking is wonderful. Itās my meditation of sorts. I hope you are in good health and spirits. Thank you so much again.
My doctor is Dr. Shahin Manoochehri-at Reading Hospital. Heās kind, knowledgeable and spends so much time with me, I always feel heard when Iām with him. His staff is wonderful as well. All the nurses for my surgeries told me heās their favorite in the hospital!
Iām doing well. I had my first surgery last July and my second this past December. I still get nuero-fatigue and still have some word finding issues, but overall I feel good! Iām anxious for Thursday, yet Iāll be grateful we will have some more clarity on how my brain is responding.
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Thank you. This is so very helpful! Please keep me posted on how you are doing after the 20th. I am rooting for you and for good health!
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Hi. Just checking in on you, any new developments. Hope you are well. I have a total of 3 appointments now, you inspired me. Thank you!
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hey @Juluzi oh thatās great! Whenās your next one?
I posted a looong update on a new thread since itās, well, a lot lol.
Hanging in there, had consult (virtual) with BIDMC. Hopkins is still in progress and not quite sure what to do there yet, but leaning toward exploratory angiogram *somewhere (either Hopkins or MUSC likely).
Next step will probably be call MUSC back and talk with Dr. Spiottaās nurse.
We also went to the beach for a couple days 
JUST what we needed.
J
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The beach helps so much. Wishing I was there now! Two weeks till my next appointment, which seems way far off but I am taking walks, breathing and trying to not google too much (but I still do it 
). Iām trying my best to be a glass is half full person and I have good moments and bad ones but I think this is to be expected and normal. Iām not good at waiting. I like solutions that are fast but this is teaching me patience. I hope you find your answers and find yourself in good hands. I am rooting for you.
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Hey @Juluzi just checking in to say happy almost Independence Day and see how youāre doing.
Iām getting MRA next Monday. Decided to go with University of MD so feel much better about life now that I picked my care team.
Know you have some visits coming up so fingers crossed!
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Hi! Finding your care team is so important. My husband went to the University of MD and I feel like this is a good sign for you. Next week I have two big appointments and I am hoping one of them is it! If not, the search will continue. Do you know next steps, or is it too soon? I am rooting for you and wishing you all the best! Thank you for reaching out. Here for you if you ever want to connect outside of this. 
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Still too soon! Weāll regroup after the MRA.
But Iām feeling much more peaceful/in acceptance about things in general, so less stress overall.
Ok fingers crossed for the next two appointments!
Iāll definitely say after a couple visits it was really clear to me which doc/team was the right fit for me.
Agree with @Judi - keep going until you find that.
J
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I like the sound of acceptance and being at peace. I want to get to that place as well. I hope to once I land on my team and next steps. Please keep in touch. Wishing you all the best going forward on this journey.
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Hi Judy. My Dr mentioned bilobed and/or maybe a daughter sac. I saw you meantioned this before. Are these more dangerous or harder to treat that you know of? I did also send them a message too. Thanks in advance.
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I donāt think Iām at all qualified to answer because once I got comfortable with my surgeon, i stopped googling and let him do his thing. I didnāt want the added stress. But Iāll share my VERY general understandingā¦I believe the term to describe these characteristics is āmorphologyā and if you type that in the search you will probably get more info. But while morphology MAY make it more difficult, it is not necessarily so. It depends on the location itself, meaning which arteries are involved, and other variables and characteristics unique to the aneurysm and the individual that will determine whether itās harder to treat. Meaning certain shapes will eliminate or include certain treatments. I had one with a daughter sac that was treated in my last fast and simple procedure (of course it was easy for me since I slept through it, but my surgeon made it sounds pretty quick and routine too). It also occluded fast. So I would say that the daughter sac in that case meant nothing to me in terms of successful treatment. So I donāt think you should let the terminology alone scare you. You really need your neurosurgeonās interpretation.
Two out of 3 of mine were creatively formed 
(obviously my deliberately light descriptions of almost everthing Iāve encountered are my coping mechanisms, which allow me to detach from the fear, but please donāt think Iām ever making light of your concerns). But Iāll see if I can find you some more educated posts on the subject as Iām sure they exist. But again I think you should wait for facts from your surgeon before you worry. If itās like my last one, youāll raise your stress levels for no reason whatsoever.
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Thank you. You are so right, Dr Google does no good. I just need to keep asking questions and finding the right Dr. I have two appointments next week and I hope to get more clarity. If not I have another two appointments on standby later in the month. I appreciate your glass is half full mentality. Itās helpful and I need to get on board with that. I need to breath and relax and live. Thank you for your continued support.
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