Just diagnosed with AVM & aneurysm--Freaking!

Takes a bit, but hang in there, you’ll get it all worked out!

Thanks :heart:

Ya I wouldn’t wait if anyone that has gone through a rupture like my wife back in Oct 2017 we are just now getting her to walk 25 steps and depending on where the blood hits the brain it will kill those brain cells.

Oh my.

The blood doesn’t really hit the brain, it would have to go through the pia matter. The blood from a rupture goes into the subarachnoid space. Because of the skull and somewhat the Dura matter, the blood from an SAH puts pressure on to the brain.

https://www.csuchico.edu/~pmccaffrey//syllabi/CMSD%20320/362unit3.html

I don’t usually use Wikipedia, but here’s a good discussion on the meninges https://en.m.wikipedia.org/wiki/Meninges

Here also on Wikipedia is an explanation of subarachnoid cisterns and the arteries in those cisterns. https://en.m.wikipedia.org/wiki/Subarachnoid_cisterns

Here’s a nice paper on CSF http://www.mc3cb.com/pdf_ap_lab/Meninges%20%26%20Cerebral%20Spinal%20Fluid.pdf

Hi. Your reaction is probably very common I would say even normal. I went through the same emotional upheaval but didn’t want to admit it. I became Anxious,worried about everything I did ate and went. Thought about my condition nonstop and anything I was doing to contribute to it. Stopped exercising, running was my favorite form of exercise and now I can’t run. Take it from all the people who have written to you it’s not worth thinking about it. Live your life to the fullest. Watch your diet, watch your blood pressure. Do your yearly check and MRI and you should be good. Please take care.
Sincerely,
Lydia

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Thanks Lydia, did your aneurysm rupture or did you have surgery? :heart:

No still wait and watch 5 years in. I’m in my 50s so things are changing but I will live life joyfully to the fullest.

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So that’s good

My motto is today is a present :gift:. This is something that a couple of people wrote me when I had the same questions you had. It’s a process and there are days when pain strikes fear in our hearts but we are the lucky ones because we know what is happening.

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Hi you all!! So good to hear all your stories! 15 years ago I was told I had 2 aneurysms. on the WATCH AND WAIT… You all know the drill. In 2011 I had my largest aneurysm treated with a pipeline stent. No real post procedure issues. 2017 at my check up angiogram they found 2 more. One month later they were treated with a long pipeline procedure. Pretty rough recovery. Loss of sense of smell and taste, terrible memories issues, and an emotional wreck. Two years later, and pretty much recovered from that but now they want to clip the remaining aneurysm. They would have to go through the last pipeline to insert the new pipeline and the 2 coils they would need to repair it. This last aneurysm hasn’t really grow much until the last year or so. It has grown a bit so we will check again in March. So I am researching and trying to make a plan. Over the last 15 years I have pretty much come to terms with the anxiety that this accompanies. Yes, I have had my panic attacks and tears. Right now I feel great!! Please, try not to worry—that just makes it so tough. I am a 66 year old retired 2nd grade teacher, wife, mom and grammie.i hope this has helped.

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Hi there,
So glad you were able to recover from all of that. Really gives me hope that if the day comes that I have to get the Annies taken care of that I too will be well.
Take care
Lydia

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Hey Lydia,
Sounds like we are sharing similar stories. You are right. Every day is a blessing. Yes, I remind myself daily that I am soooo lucky to have not had an aneurysm not rupture. Grace seems to be obtained through patience…and that is one tough virtue! Still working on it! Take care as well,
Autumn