Hello, this is my first time asking a question here. I had a 17mm unruptured aneurysm On the right side of my brain coiled in April this year I have a smaller aneurysm on the left side but this didn’t require coiling. Everything went well after the procedure and I was recovering well. I’ve had continuous sever headaches and experiences tingling sensation around my lips. I have what I describe as brain fog and moments of feeling unbalanced, as if the grounds moving. I then went on to have a stroke in May, thankfully I’m not left with any long term difficulties just the same symptoms I have after the coiling. They’ve discovered I’ve had “an extremely large” hole in my heart since birth (I’m now 53). On 20th August I was told I have “substantial”cerebral hypo perfusion, some health professionals have referred to it as hyper perfusion. The “brain” doctors are saying the perfusion is due to my heart and the stroke doctors are saying it’s due to my brain. I’ve been referred to cardiology. My blood pressure is high; averages around 165/110, but the brain doctors don’t want me on medication for this because of the impact it could have on the hypo perfusion. The Stroke doctors have said cardiology are unlikely to repair the hole in my heart because of my high blood pressure - my neurosurgeon has said if the hole repair doesn’t solve the hypo perfusion I’ll have to be considered for an ECIC bypass - has anyone else experienced anything similar?
Welcome to our group Nannyof6! I can certainly relate to the difficulty between specialists, especially the cardio and Neuro’s. It’s daunting to say the least. I cannot take metoprolol due to my coiling. I quite cold turkey when my cardiologist told me I was on it for high BP which I had never had and couldn’t get it off my records. I was on it for tachycardia. I absolutely do not recommend quitting a medication cold turkey. But the metoprolol opens up the arteries thus increasing blood flow. When we told my Neurosurgeon I quit cold turkey, she said she would have never permitted me on it. The neck of my small ruptured multilobed aneurysm wasn’t closing, thus two subsequent coilings. The last MRA I had after the third coiling said the neck was 3mm for a 5mm aneurysm. When the cardio NP insisted I go back on it, I told her my brain trumps my heart. Months later I had to have a slew of upper GI tests, they wouldn’t do one as they thought I had Brugada syndrome. Back to the Cardiologist, saw the NP again who said I couldn’t have it, as it’s rare. But she ordered the test. Got a call from the CMA who said the NP said my heart was “unremarkable”. I have learned in medical speak that is a good thing. But it raises a bunch of questions that apparently the NP didn’t want to be available for. I do have a valve in my heart that the Cardiologist wants to keep an eye on but we just got word he is moving out of state.
I had to look up the hypoperfusion and hyperperfusion, it seems like they are two different things. Remember I’m not a doctor and not even in the medical field. Hypoperfusion is a decrease in blood flow, while hyperperfusion is an increase in blood flow. It would be nice if the doctors would settle on which one it is for you. Perhaps you should ask them to clarify.
It is amazing that you have a hole in your heart that has gone undiagnosed. BIL had a hole in his heart. They found it when he was two, he had blue lips and fingernails.
This is what I’ve learned from both the Cardiologist and the Neurosurgeon - it is imperative to keep hydrated. Proper hydration allows our body to heal and it can help regulate BP. Stay away from caffeine as it increases BP. I had vasospasms for 21 days in Neuro ICU, they gave me triple H therapy to control it. Triple H therapy increases BP. Vasospasms can cause ischemic strokes. (My new neurologist said they can cause more brain damage even without having an ischemic stroke due to lack of proper blood supply). I apparently was controlling my BP despite the Triple H with relaxation breathing. My poor RNs had to adjust the meds every five to fifteen minutes because of it.
Wouldn’t it be great if we could have a medical mediator that could sit down with the specialists and us so we can come away informed and what our choices are and how they will effect us?
I hope some members can give you more information than I am able. All the best, stay with us and let us know how it goes.
Thank you for your response, sorry for the delay - I’ve not had a good few days, my headaches are getting unbearable. A medical mediator would be amazing, if only 
Drink water, or one of the sports drinks, you may be under hydrated. And increase your good protein.