Brain Aneurysm Support Community

Hello I’m new, I’m scared and I’m grateful

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Seenie from ModSupport

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Hi Captain,
I hope you came through the surgery well. I was very tired the first couple of weeks after, but so very glad that it was over. Hope to hear from you soon after you get some rest. Hopefully all of the stress you have been carrying that comes along with this has lifted too.

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Welcome Rich and Karen!

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Rich - I can tell you that two years ago, my rupture happened right before Father’s Day as well. The best present I received was coming off the ventilator. While my surgery was emergent versus scheduled, I imagine that the process is quite similar. My advise is to put this into perspective, which it sounds like you have started to do. Breathe more, before reacting. Know that you are loved and cared for. Be patient. Tell people, doctors, caregivers, loved ones, how you are feeling. If you can’t remember, write it down. Best of luck.

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Karen - Sounds like it has been quite a ride. I can tell you that my emotions were a rollercoaster as well. I wasn’t so much angry as I was overwhelmed. It seemed like I was crying at the drop of a hat. Somewhere along the way, my wife advised me to change the way I was looking at things. She figured out I was crying because I kept thinking about what almost happened, almost dying or having a significant change in my quality of life. She suggested to evaluate things from the perspective of being grateful/thankful for what I still have. I still have my family and nearly a full recovery. Yes there are remnants from the event, but in comparison to where I almost landed, I can live with the deficits. You are very correct that therapy will help. I would recommend PT, OT and Speech before psychotherapy. That is not to say that psychotherapy won’t be needed, but I think a lot of things get flushed out as you health improves. That said, the counselling helps to process the near death experience. Best of luck!

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Hello,
Rich thank you for your service and all you do
To protect the community.
I am seven years post op and doing great, this
Group is what got me thru the first year. No one understood my recovery except my friends
On this site.
It’s been a long time since I’ve been back but never forgot the words of encouragement from all the wonderful people in this room.
For all the new comers continue to reach out.
Rich

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Hi Captain I know that this surgery is scary. I have been dealing with this since my early 20’s and I and still here 4 surgeries later I am still going to concerts at least I was before COVID-19 life is what you make it. We are given a gift so please enjoy life to the absolute fullest.

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And it’s people like you, RichardB, that make this community such a special place to be. Nice to see you back again!

Seenie from ModSupport

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this was so inspiring! I had an aneurysm repair in March followed by an SAH. I am recovering and grateful to be alive. I, like you, was a 62 healthy woman who ate well and walked regularly. I have no paralysis and all my faculties. So we have much to be thankful for! My six month checkup is in september. I am wishing you all the best!

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Thank you! We are very lucky. Are you very tired? I seem to want to sleep more than normal. 4 weeks post surgery.

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YES I AM TIRED! I sleep like a rock for and 10-11 hours per night…I don’t know if it’s the melatonin the doctors suggested or the stroke recovery. Nonetheless I am very tired and sleep a lot…I hear this is normal…I am not very patient!

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Ok, that helps a lot. I’m not very patient either so this is all new for me too.
So happy you’re recovering well though. Makes me happy and let’s me know some of this stuff is pretty normal.
Thanks!
We need to keep in touch :sunglasses:

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YEs we do need to stay in touch. I need to read the journeys of others which gives me hope. I slept like a log last night…which is totally normal for me since my annie repair. I have another angiogram in september which I am nervous about because I DO NOT Want to go back to any hospital right now! You take care and let me hear how you are doing. I live in NC…how about you?

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Best wishes and fingers crossed for a good report in September :blush:
I live on Orcas Island in the San Juan islands in Washington state. My hospital is Harborview in Seattle. I also have no desire to be near a hospital again. Covid is crazy here and so are demonstrators! Ack!
Have a very lovely day!

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I have watched the news showing the unrest in your city. It is truly sad to see so much destruction in our country right now. So far NC has been somewhat calm during a crazy time although we have our share of covid! Please let me know how you are doing. Fear is so powerful when it gets into our souls…I have a shirt on now that says Fear over Faith! I have lived through some terribly fearful times! May you find peace in your journey!

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Thank you for sharing all of that with me that’s a scary ride on a helicopter. I’ve put so many people on helicopters that I’ve been in similar shoes praying they be OK. Most of my sadness comes from my moms ruptured aneurysm she’s alive but it ruined her life hers was not very well understood as it happened in 1996 so the technology wasn’t there to help her like it is now. I was a brand new Fire fighter 20 years old taking care of my mom I would do it again because that’s what love is all about. I still can’t get the thoughts of what I saw and where she was that and we have an out of my head I think that’s what frightens me so much about my upcoming surgery to get the coil in the

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Thank you so very much for giving me hope your family says the same thing life is what we’re going to make of it and what I make of it. I just got my first prescription for blood thinners before my quarterly surgery and I don’t start them until I find out exactly when I’m getting my surgery which could be 7 August. I’m trying to do everything I can to have fun and take it vantage of all the things that I need to do around the house. Getting along with my family‘s been increasingly hard I think it’s because I’m scared and I don’t know how to translate scared to tears it’s mostly scared to anger and that sucks. I think I’ve done that my whole life whenever I’m afraid or sad I get upset instead of talking about it and this is pretty good that I can say this all of you. Thank you for talking about concerts because that something I love to do and I pray we get the chance to do that again I love Metallica and they’ll be here in Sacramento in the fall I hope that Covid is gone by then or we figured out someway to put it at bay, thank you again for everything

Rich

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I have always wondered why some of our parents didn’t teach the importance of being allowed to cry when we are scared or hurt. I learned that anger was more acceptable then tears not only in my own family, but those that I served. It’s a very hard lesson to learn to communicate feelings. It has to start with owning them and then sharing. It is okay to cry. It is okay to be afraid. The biggest step we can take is telling our family our true feelings.

I learned decades ago that men talk better when their hands are busy on a project. Women seem to talk better around the kitchen table or cooking. These are generalizations and don’t hold for everyone.

Your family probably knows you well enough Captain Rich to understand the anger is fear. If you can just tell one person verbally that you’re scared, I promise it will be a new beginning and give not only yourself some relief but your family and loved ones as well. It will give them permission to tell you how scared they are as well.

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Mo,

I really appreciate the way you explained anger/fear. I had a hard time yesterday when I found out they didn’t properly flush the Galolidium from my system on the 17th. If it weren’t for my nurse wife giving me NAC, I’d still feel like junk. NAC is an amazing over the counter supplement That purifies your liver and kidneys, mostly kidneys and is used in the emergency room for people that overdose on ibuprofen or Galolidoum poisonings. Believe it or not I just started taking it yesterday and I feel amazing this morning. I’m doing better with letting fear state fear and letting my emotions come out I appreciate what you said it made me really think so thank you.

Rich

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I’ve never heard of NAC, thanks for that as I’m allergic to the dye, allergic to the prednisone I have to take for the dye allergy as well. Usually it’s just a lot of benedryl and water to flush out things.

Here’s a link for others who didn’t know https://www.webmd.com/vitamins/ai/ingredientmono-1018/n-acetyl-cysteine-nac

As with all OTC’s, I will ask my doctors if I can take it…