Hi Chris, yes Im experiencing Depression and really bad fatigue as well and yes no one understands and I given up trying to explain. Ive had two Aneurysms first one whilst pregnant 21 years ago and second one 2 years ago. Ive always been a energenic person on the go all the time feeling like this is so hard. Im fifty this year and some days i feel 100.
I went to see a Chinese Herbalist about 2 months ago because ive tryed everything he specialized in Chronic Fatigue Symdrome so I thought I can try, so far yes some days it does give me more energy and I dont have to push myself so much but some days are still the same I do not feel like moving an effort to do anything so I just sit home and cry, he said it will take a while to really start working and its a matter of changing herbs to help. Its one idea Chris sorry I dont have any positive answers Im going to see a new Neurologist a female one on Monday Im going to tell her everything see if she has
any answers also I need to have a test to see jf all ok and no new Aneurysms. I will let u know what she says.
We are not strange Chris and we carnt make surpose friends understand I look to God because I know he will always be with me no matter what
Shelley, please have faith. Things will get better in time. I understand where you are comming from but one must think postive to make positive. I back in May had surgery and I to have to say that I am still fatigued and have nasty headaches as well as I am always sad. Having someone to speak with can be very imprtant. If you don’t already have a councler I would sudgest you find one. Also rest when it is needed. Take small steps and always try and be positive about life… if you need to chat look me up… chat away.
Hi Shelley! Thanks for your reply. I know how you feel about no one understanding. It is so frustrating and I long to find someone else that has been through this and just be able to meet for coffee or lunch once in awhile for the reassurance that we ARE normal! I think the Chinese Herbalist sounds like a good idea and I am glad you are finding some comfort in it. God bless you and keep me posted on your upcoming tests!
Hi, MB. I had a ruptured annie and SAH 15 months ago. I have experienced a headache everyday since. Everyday..... :( It is a vicious cycle. I have to take prescription meds for the headaches which are debilitating and can be down right maddening. The meds I take cause side effects like extreme fatigue which cause sadness, depression and isolation. I know, I am truly blessed. I am grateful to be a survivor. I just wish things could be "normal." I see my healthy friends having fun and laughing like I used to be able to do. I was so active "before," now I feel like I can hardly make it through the day. I hope as time passes, things will get better....for all of us. :)
Wow, Chris! You really are a tough cookie. Definitely, follow the advice and be persistent with your doc to get the best counseling and meds for your situation.
Please refer to the note above, I posted for MB for my info.
I think we all (at least I speak for myself) are somewhat in "shock" when things happen unexpectedly and are traumatic. I experienced a similar sort of "shock" a few years ago when my Dad died in January and my Mom died just a few months later (April). I functioned on "auto-pilot," and pretty much just went through the motions. I recall when someone expressed condolences, etc; it seemed almost like it had happened to someone else instead of me. About 6 months afterwards, it hit me that my parents died and weren't coming back! :(
Hi Chris, Im not sure if I suffered Depression from my first aneurysm that one leaked and in those days here in Australia Aneurysms were pretty rare, and I had my son his father left at 3 weeks old so i was so busy being a single mum no one offering to help, I really couldnt think of myself and how I felt, but after this last one like i said horrible and I have to try and work too.Thank u so much for replying Chris
Thank u so much MB I do have a Councler that I see he is great I look forward to my appointments with him I also see I Chiropractor for my headaches which helps so much they specialise in Neuro problems. Pls contact me too if u need to talk its so unreal to have people who understand. Thank u again.
REG, Thanks for the name of the book. Have you read any the book? Reading comprehension has been a problem since my aSAH. So funny, I have to re-read and re-read things. Sometimes, I can make it through an entire chapter before realizing I have already read it and just forgot. :/
I went thru vision therapy for numerous vision failures (can never remember the right terminology)...I did regain reading/comprehension...so thrilled...And, yet, years later I am yet sooo slow...I have learned to read/outline/re-read/study...and, memory can still trip...
Curious...I would know/sense how hard I was trying to read...tho not understand/remember...
When you reread...do you eventually remember? I still have to do so much as noted above...
Have you had your vision tested? Seen a neuro-oph?
I too have problems with reading and comprehension. It may be a memory thing, I sometimes think it is because I've forgotten the start of the sentence before I get to the end! I can now manage novels, but anything a bit literary or with lots of adjectives, or an 'official' document or form defeats me. I think I'm still improving though (18 months post treatment for unruptured aneurysm)
Hi, Pat. Most of the time, re-reading triggers the memory of having read something before. I experienced my ruptured a/SAH in April 2012. Got new glasses is September 2012 and had another vision change and had to get new glasses a few weeks ago. Have been taking Depakote for about 2 weeks, now. Sometimes, I wonder if the various meds I take cause blurred vision. Saw a neuro-optham in January, ocular pressure was normal.
Thanks, Judith. Yes, "official" documents, etc can be rather intimidating to me. Too much information coming at me. Nice to hear, things are still improving for you. I am 15 months out. Tryin' to keep the faith and hope that I will return to the person I was and be stronger for what it takes to get me there.