# personal-stories **URL:** https://www.bafsupport.org/c/general/personal-stories/10.md [Latest](https://www.bafsupport.org/latest.md) · [Categories](https://www.bafsupport.org/categories.md) · [Tags](https://www.bafsupport.org/tags.md) --- ## [About the personal-stories category](https://www.bafsupport.org/t/about-the-personal-stories-category/16)
**Author:** [@system](https://www.bafsupport.org/u/system)\ **Replies:** 0\ **Last updated:** [September 26, 2016, 8:06am UTC](https://www.bafsupport.org/t/about-the-personal-stories-category/16 "2016-09-26T08:06:17Z")
Share your "annie" story for yourself and to help others --- ## [Newly diagnosed and scared](https://www.bafsupport.org/t/newly-diagnosed-and-scared/20440)
**Author:** [@Maxbaifred](https://www.bafsupport.org/u/Maxbaifred)\ **Replies:** 12\ **Last updated:** [October 23, 2026, 6:52pm UTC](https://www.bafsupport.org/t/newly-diagnosed-and-scared/20440 "2026-10-23T18:52:33Z")
Hi, I’m really glad to have found this forum. I’ll be 60 in November and I had an incidental finding on a CT scan two days ago a 3 mm brain aneurysm. I always knew this was possible because 19 years ago my mom had an ane… --- ## [New diagnosis as of yesterday and am scared!](https://www.bafsupport.org/t/new-diagnosis-as-of-yesterday-and-am-scared/20386)
**Author:** [@Livelaughlove](https://www.bafsupport.org/u/Livelaughlove)\ **Replies:** 22\ **Last updated:** [October 11, 2026, 10:35pm UTC](https://www.bafsupport.org/t/new-diagnosis-as-of-yesterday-and-am-scared/20386 "2026-10-11T22:35:39Z")
Thank you for welcoming to this community! It’s rather comical that one of my biggest fears throughout my life was dying of a brain aneurysm, and here we are. My story begins yesterday, as I received the dreaded inciden… --- ## [New member looking for advice](https://www.bafsupport.org/t/new-member-looking-for-advice/20377)
**Author:** [@Sev](https://www.bafsupport.org/u/Sev)\ **Replies:** 29\ **Last updated:** [October 10, 2026, 3:01pm UTC](https://www.bafsupport.org/t/new-member-looking-for-advice/20377 "2026-10-10T15:01:06Z")
Hi everyone, I am new to this group – thank you for allowing me to join. I will share my story below, but since I learned about my aneurysm just a few weeks ago, I am hoping to receive some advice on how to navigate thi… --- ## [3-mm cavernous internal carotid artery aneurysm](https://www.bafsupport.org/t/3-mm-cavernous-internal-carotid-artery-aneurysm/20443)
**Author:** [@Maxbaifred](https://www.bafsupport.org/u/Maxbaifred)\ **Replies:** 2\ **Last updated:** [October 6, 2026, 9:21pm UTC](https://www.bafsupport.org/t/3-mm-cavernous-internal-carotid-artery-aneurysm/20443 "2026-10-06T21:21:26Z")
Has anyone been diagnosed with this type of BA? Just curious about this location, any info is greatly appreciated. I don’t go to my GP until 10/9 so it’ll be another couple weeks or more for me to get into a specialist… --- ## [Everyone’s healing is different](https://www.bafsupport.org/t/everyone-s-healing-is-different/19767)
**Author:** [@christina112](https://www.bafsupport.org/u/christina112)\ **Replies:** 8\ **Last updated:** [June 8, 2026, 5:09pm UTC](https://www.bafsupport.org/t/everyone-s-healing-is-different/19767 "2026-06-08T17:09:41Z")
Hello I’m new here & have ready most of the wonderful success stories from yall. My journey hasn’t been like most. (Sharing complications on Unruptured Annie), My first anxiety attack landed me in the ED June 2023, that… --- ## [My First Yearly Checkup](https://www.bafsupport.org/t/my-first-yearly-checkup/20233)
**Author:** [@Pepsolman](https://www.bafsupport.org/u/Pepsolman)\ **Replies:** 3\ **Last updated:** [June 2, 2026, 12:14pm UTC](https://www.bafsupport.org/t/my-first-yearly-checkup/20233 "2026-06-02T12:14:15Z")
On May 14, I received my first yearly follow up visit from my first annual MRI after surviving a surprise 3mm aneurysm rupture that put me in the ICU for a week back in 2025. He told me he’d see me in a year. The anny is… --- ## [New member introduction](https://www.bafsupport.org/t/new-member-introduction/20209)
**Author:** [@Ulrichli](https://www.bafsupport.org/u/Ulrichli)\ **Replies:** 6\ **Last updated:** [May 18, 2026, 10:46am UTC](https://www.bafsupport.org/t/new-member-introduction/20209 "2026-05-18T10:46:53Z")
Good morning! I wanted to get on here and introduce myself and tell you all how happy I am to have found this group and how much all of your stories have touched me. I’m Lisa, a 59 year old mother of two adult sons, hap… --- ## [Weird funk](https://www.bafsupport.org/t/weird-funk/20188)
**Author:** [@ronk](https://www.bafsupport.org/u/ronk)\ **Replies:** 1\ **Last updated:** [April 28, 2026, 4:38pm UTC](https://www.bafsupport.org/t/weird-funk/20188 "2026-04-28T16:38:27Z")
not thrilled at neurosurgeons visit! He said my findings were spine cord stenosis and basically cited old age! More x rays, mri ordered. the vibe of his attitude was not well received by me or my Niece, he seemed distan… --- ## [1week post op flow diverter pipeline for Left ICA cavernous sinus](https://www.bafsupport.org/t/1week-post-op-flow-diverter-pipeline-for-left-ica-cavernous-sinus/20119)
**Author:** [@Mandygyrl41](https://www.bafsupport.org/u/Mandygyrl41)\ **Replies:** 8\ **Last updated:** [March 12, 2026, 10:42am UTC](https://www.bafsupport.org/t/1week-post-op-flow-diverter-pipeline-for-left-ica-cavernous-sinus/20119 "2026-03-12T10:42:41Z")
Hello, my name is Mandy. I am one week postop today following treatment for the left ICA in the cavernous sinus measuring 6 mm. The treatment I chose was flow diverter pipeline. Procedure was done through my wrist. Very … --- ## [Learning along the way](https://www.bafsupport.org/t/learning-along-the-way/20051)
**Author:** [@Bella1](https://www.bafsupport.org/u/Bella1)\ **Replies:** 5\ **Last updated:** [February 5, 2026, 5:59pm UTC](https://www.bafsupport.org/t/learning-along-the-way/20051 "2026-02-05T17:59:29Z")
Hello everyone, I recently joined the BAF Support Community. I feel very fortunate to have found this group and truly appreciate being welcomed here. I was diagnosed and treated for two brain aneurysms in 2025. A PED wa… --- ## [Sharing my new story…](https://www.bafsupport.org/t/sharing-my-new-story/19948)
**Author:** [@FearWonder](https://www.bafsupport.org/u/FearWonder)\ **Replies:** 4\ **Last updated:** [December 24, 2025, 4:26am UTC](https://www.bafsupport.org/t/sharing-my-new-story/19948 "2025-12-24T04:26:33Z")
A right paraclinoid internal carotid artery brain aneurysm measuring 7.3 x 8.2 mm was identified on a CT scan in 2019, during the height of my last hoorah of addiction. I do not remember being told about this diagnosis a… --- ## [New to site and Multiple aneurysms](https://www.bafsupport.org/t/new-to-site-and-multiple-aneurysms/19890)
**Author:** [@Dorene](https://www.bafsupport.org/u/Dorene)\ **Replies:** 21\ **Last updated:** [November 28, 2025, 12:51pm UTC](https://www.bafsupport.org/t/new-to-site-and-multiple-aneurysms/19890 "2025-11-28T12:51:11Z")
Hello everyone, My name is Dorene, I hope everyone is the best they can be today… :purple\_heart: 3 Aneurism’s found February 26 2025 after a SCAD (ripping an artery near my heart. )Then a heart attack followed. Accide… --- ## [10 Year Anniversary after a ruptured SAH coiling and VP SHUNt](https://www.bafsupport.org/t/10-year-anniversary-after-a-ruptured-sah-coiling-and-vp-shunt/18283)
**Author:** [@mhagele](https://www.bafsupport.org/u/mhagele)\ **Replies:** 21\ **Last updated:** [November 21, 2025, 7:28pm UTC](https://www.bafsupport.org/t/10-year-anniversary-after-a-ruptured-sah-coiling-and-vp-shunt/18283 "2025-11-21T19:28:25Z")
March 13 2024 I celebrated 10 Years Since My ruptured Brain Aneurysm coiling and vp shunt. it took 6 long years to get back to nearly normal life. Finally at 9 years to the day I went back to work doing what I love. I ho… --- ## [Survivor rehab, getting on with life as a survivor](https://www.bafsupport.org/t/survivor-rehab-getting-on-with-life-as-a-survivor/19242)
**Author:** [@sew\_short\_circuited](https://www.bafsupport.org/u/sew_short_circuited)\ **Replies:** 3\ **Last updated:** [November 21, 2025, 12:16pm UTC](https://www.bafsupport.org/t/survivor-rehab-getting-on-with-life-as-a-survivor/19242 "2025-11-21T12:16:02Z")
Hello everyone! if you are reading this you have used your superpowers to be a ruptured Anyurism survivor! Congratulations! Nov 2025 will make 8years since I survived a ruptured cerebral anyurism. I didn’t have any sig… --- ## [Confused Feelings](https://www.bafsupport.org/t/confused-feelings/2158)
**Author:** [@Jennifer\_Ham](https://www.bafsupport.org/u/Jennifer_Ham)\ **Replies:** 16\ **Last updated:** [November 11, 2025, 2:59pm UTC](https://www.bafsupport.org/t/confused-feelings/2158 "2025-11-11T14:59:18Z")
My aneurysm ruptured just after my 21st birthday. I had NO idea I had an aneurysm. It caused me to have a seizure, a stroke and a subarachnoid hemorrhage. They coiled it, and I was home just over 2 weeks later, but had a… --- ## [Has anyone seen the other side?](https://www.bafsupport.org/t/has-anyone-seen-the-other-side/3534)
**Author:** [@Alex\_W](https://www.bafsupport.org/u/Alex_W)\ **Replies:** 27\ **Last updated:** [November 11, 2025, 4:22am UTC](https://www.bafsupport.org/t/has-anyone-seen-the-other-side/3534 "2025-11-11T04:22:45Z")
Hey Everyone! I survived a ruptured aneurysm because I was at work when it hit and it just happens to be a hospital and there just happened to be a heart surgeon walking by to save my life by performing cpr on me becaus… --- ## [New to being a survivor](https://www.bafsupport.org/t/new-to-being-a-survivor/18044)
**Author:** [@Wendybeans](https://www.bafsupport.org/u/Wendybeans)\ **Replies:** 9\ **Last updated:** [November 2, 2025, 11:21pm UTC](https://www.bafsupport.org/t/new-to-being-a-survivor/18044 "2025-11-02T23:21:03Z")
Hi I’m new to the support page and new to being an aneurysm survivor. On November 20th, 2023 I had an episode where I was vomiting, lost hearing in my left ear and the world was spinning, we went to the hospital and was … --- ## [Suffered 3 migraines this past week - so I am worried](https://www.bafsupport.org/t/suffered-3-migraines-this-past-week-so-i-am-worried/19825)
**Author:** [@MLK](https://www.bafsupport.org/u/MLK)\ **Replies:** 7\ **Last updated:** [October 23, 2025, 10:16pm UTC](https://www.bafsupport.org/t/suffered-3-migraines-this-past-week-so-i-am-worried/19825 "2025-10-23T22:16:03Z")
Migraines are not new to me since a truck hit me at a stop light going 65 miles an hour - no brakes. But I haven’t had many since my aneurysms were clipped. And now my 3rd this week. I got online and found that it is b… --- ## [41 years post SAH ruptured Anny with a Berry clipping](https://www.bafsupport.org/t/41-years-post-sah-ruptured-anny-with-a-berry-clipping/19819)
**Author:** [@John\_a](https://www.bafsupport.org/u/John_a)\ **Replies:** 6\ **Last updated:** [October 18, 2025, 12:18am UTC](https://www.bafsupport.org/t/41-years-post-sah-ruptured-anny-with-a-berry-clipping/19819 "2025-10-18T00:18:19Z")
Hello all I just celebrated 41 years since my SAH craniotomy from a ruptured Anny My name is John, and I am 62 years old. I experienced a Thumb size Aneurism that had acquired a “Berry tit” which is an Anny on an Anny.… --- ## [Stem Cell Treatments](https://www.bafsupport.org/t/stem-cell-treatments/19775)
**Author:** [@Razorback72](https://www.bafsupport.org/u/Razorback72)\ **Replies:** 1\ **Last updated:** [September 23, 2025, 1:16pm UTC](https://www.bafsupport.org/t/stem-cell-treatments/19775 "2025-09-23T13:16:43Z")
Has anyone had any experience with stem cell therapy? My husband is a 9 year AVM survivor and I am currently researching. We’ve been told since his symptoms are “stroke like”; TBI, he could receive benefits. I’m just… --- ## [New Member - Jojo AKL, NZ](https://www.bafsupport.org/t/new-member-jojo-akl-nz/19190)
**Author:** [@jojo29](https://www.bafsupport.org/u/jojo29)\ **Replies:** 58\ **Last updated:** [July 27, 2025, 4:51pm UTC](https://www.bafsupport.org/t/new-member-jojo-akl-nz/19190 "2025-07-27T16:51:26Z")
Talofa lava, My name is Joanne (Jojo) and I’m excited to join this supportive community. I recently received a diagnosis of a 12mm left ICA aneurysm, which was discovered incidentally during an MRI for a different condi… --- ## [Question re: post surgery fatigue & recovery](https://www.bafsupport.org/t/question-re-post-surgery-fatigue-recovery/19532)
**Author:** [@NancyG](https://www.bafsupport.org/u/NancyG)\ **Replies:** 5\ **Last updated:** [June 26, 2025, 3:53am UTC](https://www.bafsupport.org/t/question-re-post-surgery-fatigue-recovery/19532 "2025-06-26T03:53:53Z")
Hi everyone, I’m new to this group and I’m grateful for everyone here. I just had surgery less than 2 weeks ago on 6/9 having 2 coils and a stent implanted for a 3mm aneurysm. My first surgery was 10/5/2022 for a WEB me… --- ## [Plagued by past memories](https://www.bafsupport.org/t/plagued-by-past-memories/17045)
**Author:** [@Tenged](https://www.bafsupport.org/u/Tenged)\ **Replies:** 12\ **Last updated:** [June 21, 2025, 11:43am UTC](https://www.bafsupport.org/t/plagued-by-past-memories/17045 "2025-06-21T11:43:22Z")
Hi. This is Kim and my husband, Dan, had an aneurysm rupture last year. I’m writing for him, with his OK because his computer isn’t working and he’s struggling. Right now his main struggle is that he has memories from 20… --- ## [3 Weeks Post PED](https://www.bafsupport.org/t/3-weeks-post-ped/19111)
**Author:** [@Amorgan](https://www.bafsupport.org/u/Amorgan)\ **Replies:** 12\ **Last updated:** [March 6, 2025, 11:24am UTC](https://www.bafsupport.org/t/3-weeks-post-ped/19111 "2025-03-06T11:24:53Z")
Hello, I’ve been a member for a few years but have mostly just read the posts and didn’t share. I found out about my aneurysm five years ago and since it was small and the risk of rupture was small, I was just getting ye… --- ## [New here :)](https://www.bafsupport.org/t/new-here/525)
**Author:** [@tweeter](https://www.bafsupport.org/u/tweeter)\ **Replies:** 26\ **Last updated:** [February 27, 2025, 11:00am UTC](https://www.bafsupport.org/t/new-here/525 "2025-02-27T11:00:35Z")
just thought id say hi to you all as im a newbie to this community.I am surviver of one rupture (sah) back in 2004,they discovered 5 in total,2 crainiotomies later and 4 clippings im still waiting for the final op.Over … --- ## [Getting cabin fever](https://www.bafsupport.org/t/getting-cabin-fever/19071)
**Author:** [@ronk](https://www.bafsupport.org/u/ronk)\ **Replies:** 14\ **Last updated:** [February 2, 2025, 11:12am UTC](https://www.bafsupport.org/t/getting-cabin-fever/19071 "2025-02-02T11:12:46Z")
:smiley:2025-01-28T05:00:00Z (UTC) --- ## [Diagnosis, Failed Pipeline Stent, now awaiting Permanent Balloon Occulsion on Dec. 20th](https://www.bafsupport.org/t/diagnosis-failed-pipeline-stent-now-awaiting-permanent-balloon-occulsion-on-dec-20th/1056)
**Author:** [@Shelley\_D](https://www.bafsupport.org/u/Shelley_D)\ **Replies:** 14\ **Last updated:** [December 24, 2024, 12:54pm UTC](https://www.bafsupport.org/t/diagnosis-failed-pipeline-stent-now-awaiting-permanent-balloon-occulsion-on-dec-20th/1056 "2024-12-24T12:54:01Z")
Hello to All! My right eylid drooped a few months ago and then I had some pain behind my right eye. November 3rd I had an MRI and it showed an aneurysm size of 2.5 cm, right cavernous carotid. My friend who is also my… --- ## [Double Rupture, Coma for 2 Months](https://www.bafsupport.org/t/double-rupture-coma-for-2-months/18712)
**Author:** [@bianca](https://www.bafsupport.org/u/bianca)\ **Replies:** 13\ **Last updated:** [October 8, 2024, 2:37pm UTC](https://www.bafsupport.org/t/double-rupture-coma-for-2-months/18712 "2024-10-08T14:37:07Z")
Hi- I’m reaching out on behalf of my partner’s sister Bianca who suffered a double rupture March 6th and spent a good 5 weeks in the ICU in a coma. Mid-April she was moved to a sub-acute nursing facility and started open… --- ## [Looking for information about flow diverter](https://www.bafsupport.org/t/looking-for-information-about-flow-diverter/18437)
**Author:** [@Notme4this](https://www.bafsupport.org/u/Notme4this)\ **Replies:** 4\ **Last updated:** [August 29, 2024, 3:47pm UTC](https://www.bafsupport.org/t/looking-for-information-about-flow-diverter/18437 "2024-08-29T15:47:54Z")
Dr. saying low chance of rupture of my 4.6 left OHTHA LMIC segment ICA SACCULAR aneurysm pardon me I’m still trying to get used to the terminology. I go in for my second scan July 8, but as he was telling me low chance, … [Next page](https://www.bafsupport.org/c/general/personal-stories/10.md?page=1)