# Bens Friends **URL:** https://www.bafsupport.org/c/bens-friends/22.md?page=1 [Latest](https://www.bafsupport.org/latest.md) · [Categories](https://www.bafsupport.org/categories.md) · [Tags](https://www.bafsupport.org/tags.md) **Page:** 2 --- ## [DickD Reflects -- Full Article](https://www.bafsupport.org/t/dickd-reflects-full-article/12475)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 15, 2019, 10:35pm UTC](https://www.bafsupport.org/t/dickd-reflects-full-article/12475 "2019-11-15T22:35:17Z")
Ever Wondered What it’s like to be a Ben’s Friends Moderator? At the heart of Ben’s Friends are our Moderators, who play varied and interesting roles. Our communities wouldn’t be the same without them: they’re central t… --- ## [DickD Reflects on Being a Ben's Friends Moderator](https://www.bafsupport.org/t/dickd-reflects-on-being-a-bens-friends-moderator/12474)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 15, 2019, 10:06pm UTC](https://www.bafsupport.org/t/dickd-reflects-on-being-a-bens-friends-moderator/12474 "2019-11-15T22:06:03Z")
Ever Wondered What it’s Like to be a Ben’s Friends Moderator? At the heart of Ben’s Friends are our Moderators, who play varied and interesting roles. Our communities wouldn’t be the same without them: they’re central t… --- ## [Live in or near LA? Ben’s Friends needs you!](https://www.bafsupport.org/t/live-in-or-near-la-ben-s-friends-needs-you/12469)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 14, 2019, 7:49pm UTC](https://www.bafsupport.org/t/live-in-or-near-la-ben-s-friends-needs-you/12469 "2019-11-14T19:49:29Z")
Hello Friends We’re currently working on a fundraiser video and our founder, Ben Munoz, will be in Los Angeles together with other community members to shoot interviews. If you would be willing to share your story on c… --- ## [Free Medical Care on 11/11 for Veterans](https://www.bafsupport.org/t/free-medical-care-on-11-11-for-veterans/12452)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 7, 2019, 7:23pm UTC](https://www.bafsupport.org/t/free-medical-care-on-11-11-for-veterans/12452 "2019-11-07T19:23:29Z")
Ben’s Friends has Partnered with Medici so that on This Veterans Day we can recognize the remarkable sacrifices of our amazing Veterans by offering free doctors consults on 11/11 through our doctor/patient communication … --- ## [Spotlight on our Members: Jane from LivingWithPsoriaticArthritis.org](https://www.bafsupport.org/t/spotlight-on-our-members-jane-from-livingwithpsoriaticarthritis-org/12434)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 1, 2019, 3:04pm UTC](https://www.bafsupport.org/t/spotlight-on-our-members-jane-from-livingwithpsoriaticarthritis-org/12434 "2019-11-01T15:04:13Z")
Spotlight on our Members: Jane from LivingWithPsoriaticArthritis.org Jane, who lives in Indiana, is one of our Living with Psoriatic Arthritis members, and one of our longtime moderators. She and our other moderators ke… --- ## [Should I Say ‘Person with a Disability’ or ‘Disabled Person?’](https://www.bafsupport.org/t/should-i-say-person-with-a-disability-or-disabled-person/12361)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [October 12, 2019, 2:29pm UTC](https://www.bafsupport.org/t/should-i-say-person-with-a-disability-or-disabled-person/12361 "2019-10-12T14:29:00Z")
Ben’s Friends Editor’s Note: Although this article is specific to Canada, it’s full of excellent points that could and should be topics for conversation and social change worldwide. Should I Say ‘Person with a Disabilit… --- ## [Do You Know A Medical School Hopeful](https://www.bafsupport.org/t/do-you-know-a-medical-school-hopeful/12338)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [October 3, 2019, 9:58pm UTC](https://www.bafsupport.org/t/do-you-know-a-medical-school-hopeful/12338 "2019-10-03T21:58:33Z")
Do you know someone who aspires to medical school or one of the helping professions? They may be interested in this volunteer opportunity at Ben’s Friends. Please pass it on! We have a limited number of volunteer patien… --- ## [Enjoy Safe Exercise at Home](https://www.bafsupport.org/t/enjoy-safe-exercise-at-home/12206)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [August 29, 2019, 6:01pm UTC](https://www.bafsupport.org/t/enjoy-safe-exercise-at-home/12206 "2019-08-29T18:01:36Z")
This article is written by Jacklyn Donalds; posted by Jennifer Moulder on feedspot.com Exercise can and should be considered an important part of your strategy in combating chronic illness – considering its important ef… --- ## [Spotlight On Our Member: Stephen from BAF](https://www.bafsupport.org/t/spotlight-on-our-member-stephen-from-baf/12192)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [August 21, 2019, 8:36pm UTC](https://www.bafsupport.org/t/spotlight-on-our-member-stephen-from-baf/12192 "2019-08-21T20:36:45Z")
There are so many fantastic people who make up the community Ben’s Friends! And every one of us has a story to tell. Periodically through Spotlight we’re going to “spotlight” a member and their story. With that in mind, … --- ## [We are in the middle of Glacier Park](https://www.bafsupport.org/t/we-are-in-the-middle-of-glacier-park/12128)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [August 7, 2019, 8:24pm UTC](https://www.bafsupport.org/t/we-are-in-the-middle-of-glacier-park/12128 "2019-08-07T20:24:00Z")
Tomorrow we “Float” Please Share on more time… https://www.gofundme.com/help-support-rare-disease-communities --- ## [Ben's Friends Foot and Float](https://www.bafsupport.org/t/bens-friends-foot-and-float/12094)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [July 31, 2019, 7:30pm UTC](https://www.bafsupport.org/t/bens-friends-foot-and-float/12094 "2019-07-31T19:30:46Z")
Your Ben’s Friends Team (Ben, TJ, Seenie, relatives and friends) are heading out to Glacier National Park to fundraise and prove what we all know: Rare disease patients can and do! Ben’s Friends gives the emotional and… --- ## [Weekly “Spot” for July 10, 2019](https://www.bafsupport.org/t/weekly-spot-for-july-10-2019/12038)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [July 10, 2019, 3:54pm UTC](https://www.bafsupport.org/t/weekly-spot-for-july-10-2019/12038 "2019-07-10T15:54:26Z")
Announcements: Your Ben’s Friends team (including TJ and Seenie) will be hosting a casual get together by the pool for members on the evening of Wednesday, July 24th. We’ll be staying near San Francisco Airport (Burling… --- ## [Simple pleasures can go a long way to increasing well-being](https://www.bafsupport.org/t/simple-pleasures-can-go-a-long-way-to-increasing-well-being/11983)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [June 25, 2019, 10:00pm UTC](https://www.bafsupport.org/t/simple-pleasures-can-go-a-long-way-to-increasing-well-being/11983 "2019-06-25T22:00:51Z")
image.png1454×424 93.7 KB News and articles of interest to over 70,000 members of Ben’s Friends communities all over the world. Simple pleasures can go a long way to increasing well-being. If your doctor told you … --- ## [SPOT: our mistake](https://www.bafsupport.org/t/spot-our-mistake/11968)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [June 20, 2019, 2:51pm UTC](https://www.bafsupport.org/t/spot-our-mistake/11968 "2019-06-20T14:51:04Z")
Yesterday we put a call out for parents of children who have Hereditary Angioedema, telling them about the opportunity to participate in some market research. What we forgot to tell you is how to put your name in as a … --- ## [Spot: Got Angioedema? Know about our Foot & Float?](https://www.bafsupport.org/t/spot-got-angioedema-know-about-our-foot-float/11929)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [June 19, 2019, 5:33pm UTC](https://www.bafsupport.org/t/spot-got-angioedema-know-about-our-foot-float/11929 "2019-06-19T17:33:46Z")
Opinion Health Market is a research agency based in London, UK. They work closely with several pharmaceutical companies helping them out to gather better knowledge and understanding of different treatment options for a… --- ## [Being gentle on ourselves](https://www.bafsupport.org/t/being-gentle-on-ourselves/11918)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [June 14, 2019, 4:19pm UTC](https://www.bafsupport.org/t/being-gentle-on-ourselves/11918 "2019-06-14T16:19:12Z")
Hello – azurelle here, your new article editor. The other day I happened upon an article written by Kelly C, someone who has chronic migraines much like myself and thought her message applied to just about everyone, not … --- ## [Virtual Reality as Pain Therapy](https://www.bafsupport.org/t/virtual-reality-as-pain-therapy/11886)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [June 7, 2019, 2:52pm UTC](https://www.bafsupport.org/t/virtual-reality-as-pain-therapy/11886 "2019-06-07T14:52:24Z")
According to a New York Times article last month, virtual reality is being used as therapy for pain. Virtual reality is more than a distraction, researchers say. It’s more like a brain hack that occupies the brain so ful… --- ## [Foot and Float to Build 10 New Communities](https://www.bafsupport.org/t/foot-and-float-to-build-10-new-communities/11826)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [May 29, 2019, 3:32pm UTC](https://www.bafsupport.org/t/foot-and-float-to-build-10-new-communities/11826 "2019-05-29T15:32:55Z")
Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove rare Disease Can’t stop - us not on Land or on Water and to raise money to build ten new Ben’s Friend… --- ## [It’s Okay To Not Be Okay](https://www.bafsupport.org/t/it-s-okay-to-not-be-okay/11778)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [May 21, 2019, 10:56pm UTC](https://www.bafsupport.org/t/it-s-okay-to-not-be-okay/11778 "2019-05-21T22:56:55Z")
It’s okay to not have the perfect life, believe it or not, social media aside, no one has a life of perfection. It’s okay to not be okay and admit it. It’s okay to struggle and to be open with those who are close to you… --- ## [What Makes Speciality Drugs so Special?](https://www.bafsupport.org/t/what-makes-speciality-drugs-so-special/11752)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [May 17, 2019, 5:30pm UTC](https://www.bafsupport.org/t/what-makes-speciality-drugs-so-special/11752 "2019-05-17T17:30:31Z")
Ben’s Friends recently attended the World Orphan Drug Conference. Not only did we meet many wonderful people, but we learned a great deal as well. This article offers more information about orphan drugs in general. Most… --- ## [Chronic illness and friendship](https://www.bafsupport.org/t/chronic-illness-and-friendship/11709)
**Author:** [@Bens\_Friends](https://www.bafsupport.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [May 8, 2019, 10:25pm UTC](https://www.bafsupport.org/t/chronic-illness-and-friendship/11709 "2019-05-08T22:25:01Z")
Is it possible to have friends as a person with chronic illness? This may seem like a silly question, because obviously the answer is yes, but I know that as a person with chronic illness, friendships can be tricky to n… --- ## [Whoopsie-Daisy!](https://www.bafsupport.org/t/whoopsie-daisy/11359)
**Author:** [@ModSupport](https://www.bafsupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [March 10, 2019, 10:35pm UTC](https://www.bafsupport.org/t/whoopsie-daisy/11359 "2019-03-10T22:35:36Z")
Whoopsie-Daisy! As we’re sure you noticed, an article “Help, I Need Somebody…” went out to the communities a few weeks ago. Although it was very well received, it did accidentally generate an abundance of email for some… --- ## [Help I need Somebody, Just not Anybody](https://www.bafsupport.org/t/help-i-need-somebody-just-not-anybody/11289)
**Author:** [@ModSupport](https://www.bafsupport.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [February 24, 2019, 11:34pm UTC](https://www.bafsupport.org/t/help-i-need-somebody-just-not-anybody/11289 "2019-02-24T23:34:43Z")
From: Merl on TBI Having a rare disease or condition can take over your life. It can also limit your entire outlook to the point that you lose all perspective. That is, if we allow it. In my former life I was a living s… --- ## [Bens Friends 2018 Report](https://www.bafsupport.org/t/bens-friends-2018-report/11156)
**Author:** [@ModSupport](https://www.bafsupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [February 1, 2019, 8:39pm UTC](https://www.bafsupport.org/t/bens-friends-2018-report/11156 "2019-02-01T20:39:08Z")
The following New communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben’s Friends Patient communities and may be of interest to our existing member… --- ## [Support Bens Friends](https://www.bafsupport.org/t/support-bens-friends/8060)
**Author:** [@ModSupport](https://www.bafsupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [September 28, 2016, 9:16pm UTC](https://www.bafsupport.org/t/support-bens-friends/8060 "2016-09-28T21:16:28Z")
Ben’s Friends operates with very low overhead, allowing us to keep our focus on patients and caregivers and providing them the information and support they need to navigate their disease or condition. Every donation matt… --- ## [Happy New Years - New Communities from Bens Friends](https://www.bafsupport.org/t/happy-new-years-new-communities-from-bens-friends/9158)
**Author:** [@ModSupport](https://www.bafsupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [December 28, 2017, 5:11pm UTC](https://www.bafsupport.org/t/happy-new-years-new-communities-from-bens-friends/9158 "2017-12-28T17:11:45Z")
Your Team has been HARD at work and through the support of our generous donors we are able to bring some new communities on line. Our hope is through 2018 we will be able to bring on at least 2 new communities per month … --- ## [A Message From Ben](https://www.bafsupport.org/t/a-message-from-ben/9135)
**Author:** [@ModSupport](https://www.bafsupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [December 21, 2017, 5:19pm UTC](https://www.bafsupport.org/t/a-message-from-ben/9135 "2017-12-21T17:19:16Z")
As a 501c3 nonprofit, we depend on our generous donors to pay the bills. They donate because they want to make a difference in people’s lives. If your community has made a difference in your life, our donors would love … --- ## [How do i delete a post i created?](https://www.bafsupport.org/t/how-do-i-delete-a-post-i-created/8990)
**Author:** [@ronk](https://www.bafsupport.org/u/ronk)\ **Replies:** 12\ **Last updated:** [November 19, 2017, 4:39am UTC](https://www.bafsupport.org/t/how-do-i-delete-a-post-i-created/8990 "2017-11-19T04:39:01Z")
I posted a pic of a friends meeting but now am having second thoughts of their pic included and i want to delete it, there is no delete button anywhere! --- ## [Is there a Section or Tab about how are we supposed to find jobs?](https://www.bafsupport.org/t/is-there-a-section-or-tab-about-how-are-we-supposed-to-find-jobs/8446)
**Author:** [@Courtney\_Mi](https://www.bafsupport.org/u/Courtney_Mi)\ **Replies:** 3\ **Last updated:** [March 25, 2017, 3:21am UTC](https://www.bafsupport.org/t/is-there-a-section-or-tab-about-how-are-we-supposed-to-find-jobs/8446 "2017-03-25T03:21:55Z")
Hi BAF! Thank you for your site. It has helped me in so many ways and one way I desperately need help is with finding A REAL JOB! If you apply for a job - they ask you to hop in the car and get down there for an interv… --- ## [Can't get into chat](https://www.bafsupport.org/t/cant-get-into-chat/8247)
**Author:** [@Peggie](https://www.bafsupport.org/u/Peggie)\ **Replies:** 11\ **Last updated:** [March 7, 2017, 2:23pm UTC](https://www.bafsupport.org/t/cant-get-into-chat/8247 "2017-03-07T14:23:53Z")
I haven't logged in for a long time. I had to reset my password but now I can't chat. I'M very confused when i try to email for help it won;t let me Thanks Peggie [Previous page](https://www.bafsupport.org/c/bens-friends/22.md) [Next page](https://www.bafsupport.org/c/bens-friends/22.md?page=2)