# Brain Aneurysm Resources **URL:** https://www.bafsupport.org/c/baf-forum/brain-aneurysm-resources/13.md?page=1 [Latest](https://www.bafsupport.org/latest.md) · [Categories](https://www.bafsupport.org/categories.md) · [Tags](https://www.bafsupport.org/tags.md) **Page:** 2 --- ## [Any groups in Los Angeles area?](https://www.bafsupport.org/t/any-groups-in-los-angeles-area/4047)
**Author:** [@Doris\_Jean\_Aase](https://www.bafsupport.org/u/Doris_Jean_Aase)\ **Replies:** 2\ **Last updated:** [May 10, 2015, 12:57am UTC](https://www.bafsupport.org/t/any-groups-in-los-angeles-area/4047 "2015-05-10T00:57:50Z")
I am a ruptured brain aneurysm survivor for 20 years now. I would like to know if there are any support groups in the L.A. area. I would love to get involved. THANK you. --- ## [Glue vs coils](https://www.bafsupport.org/t/glue-vs-coils/4044)
**Author:** [@Campanile](https://www.bafsupport.org/u/Campanile)\ **Replies:** 0\ **Last updated:** [May 7, 2015, 11:12pm UTC](https://www.bafsupport.org/t/glue-vs-coils/4044 "2015-05-07T23:12:46Z")
Since my case has become complicated, due to my recent diagnosis of Complex Regional Pain Syndrome, I am researching. For someone without CRPS coiling with a stent could be the best first choice, but for me I am doubtful… --- ## [Helpful books](https://www.bafsupport.org/t/helpful-books/3948)
**Author:** [@Theresa\_Wa](https://www.bafsupport.org/u/Theresa_Wa)\ **Replies:** 5\ **Last updated:** [March 24, 2015, 3:03am UTC](https://www.bafsupport.org/t/helpful-books/3948 "2015-03-24T03:03:32Z")
My friend and his wife recently published a book called "Damage Control" ,based on his own experience , with tough-love advice for surviving his brain injury. I highly recommend it. Other books are "My Stroke Of Insight… --- ## [Link to video on coiling procedure and more](https://www.bafsupport.org/t/link-to-video-on-coiling-procedure-and-more/3946)
**Author:** [@Wendy6](https://www.bafsupport.org/u/Wendy6)\ **Replies:** 11\ **Last updated:** [March 11, 2015, 1:12pm UTC](https://www.bafsupport.org/t/link-to-video-on-coiling-procedure-and-more/3946 "2015-03-11T13:12:59Z")
http://www.nortonhealthcare.com/unassisted-aneurysm-coiling-technique I thought I would post this as I think it's pretty interesting for those who have been coiled. On the website they have a briefer video on clipping … --- ## [Support Group in Oklahoma City](https://www.bafsupport.org/t/support-group-in-oklahoma-city/3924)
**Author:** [@MikeandMel](https://www.bafsupport.org/u/MikeandMel)\ **Replies:** 0\ **Last updated:** [March 4, 2015, 10:24pm UTC](https://www.bafsupport.org/t/support-group-in-oklahoma-city/3924 "2015-03-04T22:24:18Z")
Is there a support group in Oklahoma City Ok? --- ## [Supportive housing--any options?](https://www.bafsupport.org/t/supportive-housing-any-options/3872)
**Author:** [@Laurie3](https://www.bafsupport.org/u/Laurie3)\ **Replies:** 7\ **Last updated:** [February 26, 2015, 5:05pm UTC](https://www.bafsupport.org/t/supportive-housing-any-options/3872 "2015-02-26T17:05:33Z")
Does anyone on this list know of specialized housing for people with brain injuries? What terms would I use to search for this in my area? I recently visited a friend who was staying with her mother in a "senior and di… --- ## [BAF Webinar on when to treat unruptured aneurysms](https://www.bafsupport.org/t/baf-webinar-on-when-to-treat-unruptured-aneurysms/3798)
**Author:** [@Moltroub](https://www.bafsupport.org/u/Moltroub)\ **Replies:** 3\ **Last updated:** [December 20, 2014, 10:57am UTC](https://www.bafsupport.org/t/baf-webinar-on-when-to-treat-unruptured-aneurysms/3798 "2014-12-20T10:57:29Z")
Received this in email thought people would be interested: Mark your calendar for our next webinar. Date: Tuesday, December 9, 2014 Time: 5 PM EST Webinar Topic: "Unruptured aneurysms. When to treat" presented by… --- ## [In Search Of](https://www.bafsupport.org/t/in-search-of/3636)
**Author:** [@Sharon\_Nr](https://www.bafsupport.org/u/Sharon_Nr)\ **Replies:** 11\ **Last updated:** [November 20, 2014, 12:41pm UTC](https://www.bafsupport.org/t/in-search-of/3636 "2014-11-20T12:41:58Z")
Hello! I am looking for survivors in Memphis, TN area, or near the Tri-State areas of Arkansas, Mississippi, and Tennessee. Would you please contact me? I need some assistance. --- ## [A Book Share](https://www.bafsupport.org/t/a-book-share/3733)
**Author:** [@harlylena](https://www.bafsupport.org/u/harlylena)\ **Replies:** 5\ **Last updated:** [November 10, 2014, 7:06am UTC](https://www.bafsupport.org/t/a-book-share/3733 "2014-11-10T07:06:34Z")
I was going to add this to a discussion topic I saw a while back where the person recommended a book to read. But I can't find the post so I'm adding a new one here. Maria Ross wrote a book named 'Rebooting My Brain: H… --- ## [NEPA Support Group](https://www.bafsupport.org/t/nepa-support-group/3730)
**Author:** [@Ernie\_M](https://www.bafsupport.org/u/Ernie_M)\ **Replies:** 1\ **Last updated:** [November 7, 2014, 12:30am UTC](https://www.bafsupport.org/t/nepa-support-group/3730 "2014-11-07T00:30:02Z")
I had a aneurysm rupture 9 years ago. I was wondering if there are any support groups in northeast PA? For me it is very hard to go from an employee that always received great reviews at work to someone that receives mid… --- ## ["a letter from your brain"](https://www.bafsupport.org/t/a-letter-from-your-brain/3314)
**Author:** [@Michele3](https://www.bafsupport.org/u/Michele3)\ **Replies:** 17\ **Last updated:** [November 6, 2014, 9:21pm UTC](https://www.bafsupport.org/t/a-letter-from-your-brain/3314 "2014-11-06T21:21:54Z")
Letter%20from%20your%20Brain.docx I haven't found a way to attach a "Word" document & wanted to share this article I received from my first B.A.F. Support Group meeting in Boston a couple of years ago. Reading this tr… --- ## [Caregivers](https://www.bafsupport.org/t/caregivers/3711)
**Author:** [@ronk](https://www.bafsupport.org/u/ronk)\ **Replies:** 3\ **Last updated:** [October 30, 2014, 5:27pm UTC](https://www.bafsupport.org/t/caregivers/3711 "2014-10-30T17:27:12Z")
found this on another site and thought it might be a great resource- there seems to be a lack of caregiver resources here and other sites/ orgs--http://www.caregiver.com/ --- ## [Looking for help paying for an MRI for my daughter](https://www.bafsupport.org/t/looking-for-help-paying-for-an-mri-for-my-daughter/3695)
**Author:** [@Jenn](https://www.bafsupport.org/u/Jenn)\ **Replies:** 3\ **Last updated:** [October 29, 2014, 2:52am UTC](https://www.bafsupport.org/t/looking-for-help-paying-for-an-mri-for-my-daughter/3695 "2014-10-29T02:52:48Z")
Hello all, I am looking for possible agencies/places to assist in funding an MRI for my daughter. My paternal grandmother and mother died from brain aneurysms, and one almost killed me. The genetic odds are not in her … --- ## [Hello, questions in regards to school](https://www.bafsupport.org/t/hello-questions-in-regards-to-school/3683)
**Author:** [@Arturo\_G](https://www.bafsupport.org/u/Arturo_G)\ **Replies:** 14\ **Last updated:** [October 24, 2014, 4:01am UTC](https://www.bafsupport.org/t/hello-questions-in-regards-to-school/3683 "2014-10-24T04:01:46Z")
Hello all, my name is Arturo Gonzalez and three years ago I suffered a brain aneurysm and a stroke which almost took my life. I was 22 at the time and am 25 now and got a chance to go back to school only 7 months after a… --- ## [Relocated to Tampa](https://www.bafsupport.org/t/relocated-to-tampa/3570)
**Author:** [@Carol](https://www.bafsupport.org/u/Carol)\ **Replies:** 15\ **Last updated:** [September 15, 2014, 12:25am UTC](https://www.bafsupport.org/t/relocated-to-tampa/3570 "2014-09-15T00:25:08Z")
I recently relocated to Tampa and I am having a heck of a time finding a neurologist. I am keeping my neurosurgeon in New York for my Annual exams but for my regular long term care I need someone local. I am wondering … --- ## [Brain Anuresym Surviver Who live in Toronto/Canada](https://www.bafsupport.org/t/brain-anuresym-surviver-who-live-in-toronto-canada/3539)
**Author:** [@Ricky1](https://www.bafsupport.org/u/Ricky1)\ **Replies:** 8\ **Last updated:** [August 22, 2014, 4:42pm UTC](https://www.bafsupport.org/t/brain-anuresym-surviver-who-live-in-toronto-canada/3539 "2014-08-22T16:42:43Z")
Just looking for more Brain Anuresym Surviver here in Toronto/Canada..Because after my Anuresym I had no one who could relate what I was going through..One day finishing my last semester in university (Financial Accounti… --- ## [Headaches](https://www.bafsupport.org/t/headaches/3494)
**Author:** [@Cindy7](https://www.bafsupport.org/u/Cindy7)\ **Replies:** 20\ **Last updated:** [August 6, 2014, 8:56pm UTC](https://www.bafsupport.org/t/headaches/3494 "2014-08-06T20:56:43Z")
I am one year post annie and still suffer from severe headaches. Does anyone have anything that has worked for them that in not addicting. Also suffer numbness in right hand and foot. --- ## [Vertigo & Seattle Area Neurologist](https://www.bafsupport.org/t/vertigo-seattle-area-neurologist/3493)
**Author:** [@Karri](https://www.bafsupport.org/u/Karri)\ **Replies:** 6\ **Last updated:** [August 6, 2014, 7:15am UTC](https://www.bafsupport.org/t/vertigo-seattle-area-neurologist/3493 "2014-08-06T07:15:17Z")
Hi y'all :slight\_smile: Well this year's episodes- lol! Vertigo arrived in December and still bothers me. Was told at 1st it was a virus, Ebley manuvours seemed to help, but still comes in waves & triggered by reading th… --- ## [Join our webinar tonight - 6:00 pm est!](https://www.bafsupport.org/t/join-our-webinar-tonight-6-00-pm-est/3454)
**Author:** [@Christine\_B](https://www.bafsupport.org/u/Christine_B)\ **Replies:** 0\ **Last updated:** [July 23, 2014, 8:43pm UTC](https://www.bafsupport.org/t/join-our-webinar-tonight-6-00-pm-est/3454 "2014-07-23T20:43:30Z")
Webinar: "Estrogen and Brain Aneurysms: What we know so far" presented by Dr. Michael Chen, MD Please join Dr. Chen presenting on behalf of The Brain Aneurysm Foundation on Wedne… --- ## [Join Webinar Wednesday July 23, 2014 at 6:00 PM EST!](https://www.bafsupport.org/t/join-webinar-wednesday-july-23-2014-at-6-00-pm-est/3449)
**Author:** [@Christine\_B](https://www.bafsupport.org/u/Christine_B)\ **Replies:** 2\ **Last updated:** [July 22, 2014, 8:46pm UTC](https://www.bafsupport.org/t/join-webinar-wednesday-july-23-2014-at-6-00-pm-est/3449 "2014-07-22T20:46:54Z")
Webinar: "Estrogen and Brain Aneurysms: What we know so far" presented by Dr. Michael Chen, MD Please join Dr. Chen presenting on behalf of The Brain Aneurysm Foundation on Wedne… --- ## [A Recall](https://www.bafsupport.org/t/a-recall/3402)
**Author:** [@patioplans](https://www.bafsupport.org/u/patioplans)\ **Replies:** 4\ **Last updated:** [June 22, 2014, 12:02am UTC](https://www.bafsupport.org/t/a-recall/3402 "2014-06-22T00:02:50Z")
Another Recall... HydroFinity Hydrophilic Guidewires ...tho geared at cardiology. radiology... it is NDC/Covidien "due to reports of the outer polymer jacket tpo the core wire being damaged when the guidewire was with… --- ## [MedicAlerts n Vitamins](https://www.bafsupport.org/t/medicalerts-n-vitamins/3337)
**Author:** [@harlylena](https://www.bafsupport.org/u/harlylena)\ **Replies:** 10\ **Last updated:** [May 26, 2014, 12:13am UTC](https://www.bafsupport.org/t/medicalerts-n-vitamins/3337 "2014-05-26T00:13:00Z")
Ok two odd questions since Im lying here unable to sleep. Do you wear a medic alert bracelet to alert health staff of your history? Like type of clip, allergies, etc? I live 60 miles from my hospital and often wonder … --- ## [Summary of "Treating AVMs"](https://www.bafsupport.org/t/summary-of-treating-avms/3323)
**Author:** [@Michele3](https://www.bafsupport.org/u/Michele3)\ **Replies:** 0\ **Last updated:** [May 15, 2014, 10:31pm UTC](https://www.bafsupport.org/t/summary-of-treating-avms/3323 "2014-05-15T22:31:03Z")
Dr. Ajith Thomas, MD (Co-Director, BIDMC Brain Aneurysm Institute) at Beth Israel Deaconess Medical Center in Boston provided an update on “Treating AVMs” at the monthly” Brain Aneurysm Foundation” Support group meeting … --- ## [Finances](https://www.bafsupport.org/t/finances/3311)
**Author:** [@christine0303](https://www.bafsupport.org/u/christine0303)\ **Replies:** 9\ **Last updated:** [May 12, 2014, 9:24pm UTC](https://www.bafsupport.org/t/finances/3311 "2014-05-12T21:24:01Z")
I had aneurysm clipping in March and am not yet able to go back to work. I had 1 week of paid time off which helped with April, but now, I have NO income at all and need to come up with $1000.00 this week to pay May re… --- ## [Voluntary Recall of (some) Pipeline](https://www.bafsupport.org/t/voluntary-recall-of-some-pipeline/3260)
**Author:** [@patioplans](https://www.bafsupport.org/u/patioplans)\ **Replies:** 14\ **Last updated:** [April 13, 2014, 9:17pm UTC](https://www.bafsupport.org/t/voluntary-recall-of-some-pipeline/3260 "2014-04-13T21:17:05Z")
www.fda.gov/Safety/Recalls/ucm392987.htm?source=govdelivery& 04/11/2014 RECALL - firm Press Release...FOR IMMEDIATE RELEASE... April 11, 2014... Pull it up...for your own review... (my comment) Briefly: Covidien Impl… --- ## [Doctors](https://www.bafsupport.org/t/doctors/2874)
**Author:** [@frank](https://www.bafsupport.org/u/frank)\ **Replies:** 13\ **Last updated:** [January 2, 2014, 1:15pm UTC](https://www.bafsupport.org/t/doctors/2874 "2014-01-02T13:15:37Z")
How do you know what doctor and hospital to choose? --- ## [Energy...need some what to do?](https://www.bafsupport.org/t/energy-need-some-what-to-do/2713)
**Author:** [@Camille\_Avon\_Lady](https://www.bafsupport.org/u/Camille_Avon_Lady)\ **Replies:** 5\ **Last updated:** [September 30, 2013, 12:02am UTC](https://www.bafsupport.org/t/energy-need-some-what-to-do/2713 "2013-09-30T00:02:22Z")
What do you for energy. I am tired of dragging my butt. Need to feel alive, get things done. My house is a mess! Yard needs work. Office needs organized. Cant bring myself to do any of it. The tension in my husband is ki… --- ## [New England Aneurysm Support Group is BACK!](https://www.bafsupport.org/t/new-england-aneurysm-support-group-is-back/2719)
**Author:** [@JulieNH](https://www.bafsupport.org/u/JulieNH)\ **Replies:** 2\ **Last updated:** [September 19, 2013, 1:14am UTC](https://www.bafsupport.org/t/new-england-aneurysm-support-group-is-back/2719 "2013-09-19T01:14:42Z")
Hi All! I wanted to let everyone know that the Northern New England Aneurysm Support Group will be meeting Sat. 9/21/2013 at 11:00 a.m. at the Health South Building in Concord (just up the hill from the Concord Hospital,… --- ## [What headache pain medication do you have prescribed?](https://www.bafsupport.org/t/what-headache-pain-medication-do-you-have-prescribed/2663)
**Author:** [@Camille\_Avon\_Lady](https://www.bafsupport.org/u/Camille_Avon_Lady)\ **Replies:** 3\ **Last updated:** [August 29, 2013, 8:19pm UTC](https://www.bafsupport.org/t/what-headache-pain-medication-do-you-have-prescribed/2663 "2013-08-29T20:19:52Z")
I go see the general doctor tomorrow and I am on Norcor 2 every 6 hours to keep the headaches at bay. What alternative if the doctor puts up a stink about the measly 5% vicodine the Norcor has so I can offer alternatives… --- ## [Expert Witness](https://www.bafsupport.org/t/expert-witness/2608)
**Author:** [@dancer](https://www.bafsupport.org/u/dancer)\ **Replies:** 14\ **Last updated:** [August 20, 2013, 6:10pm UTC](https://www.bafsupport.org/t/expert-witness/2608 "2013-08-20T18:10:36Z")
Does anyone know of an expert witness, preferable in the NYC area? I feel that I am alive because of my incredible medical team. They were brilliant. Now that I have the strength, I have to fight the insurance compan… [Previous page](https://www.bafsupport.org/c/baf-forum/brain-aneurysm-resources/13.md) [Next page](https://www.bafsupport.org/c/baf-forum/brain-aneurysm-resources/13.md?page=2)