Aneursym and migraines

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Comment by Martha Helen Maxwell on October 9, 2012 at 8:49pm

Does anyone in the aneurysm and Migraine group have the Aura type migrains? And still carrying the aneurysm around, I mean?  Martha Helen

 

 

Comment by Thomasina Tijerina on September 17, 2012 at 2:47pm

Last month, on Aug. 8, I developed a grand headache as I prepared to go back to be with my husband as Mother-in-Law passed on that date.  My headached continued to get worse so I delayed my driving from Wednesday until Thursday.  By Friday, I was in ER and by Sunday I was having my 7th procedure.  (I count each angio, as well as each coiling, as a procedure.)  Needless to say, I didn't make it to any of the services for my Mother-in-Law!  I'm just grateful that I got to be there with her while she was still with us.  That was very hard for me - to be away from my husband as he grieved and coped with his mother's loss.  We each made it through our individual journeys.  Did I mention that the 8th was also our wedding anniversary. 

I still get migraines with auras and sometimes visual auras as a pre-cursor/warning that I'm about to have an episode (migraine/seizure symptoms).  I only started to notice the visual disturbances after the diagnosis of the aneurysm.  Of course, the first one was very alarming as I didn't know what was causing this 'rainbow-wavy line circle thing' growing in my field of vision.  Once explained, I started to appreciate that my brain does 'funny' things.

Comment by Patricia Gutierrez on July 30, 2012 at 9:14pm

I am glad I am not the only who has migraines after a crainotomy.  I never suffered from headaches or migraines until my 1st surgery in 2007.  I continued to have headaces by Dr's told kept telling it happens after 2 crainotomies.  I did not tell my Nuerosurgeon but I decided to visit a Neurologist locally and she recommended Fluoxetine (preventative) plus Treximet.  I forwarded all my rec's from my previous surgeries and her conculsion was the migrains were stress related.  I had 2-3 per month.  I didnt think of it until my 3 yr angiogram revealed 2 of the aneursyms had grown outside & around the clip.   Neurosurgeon if I had any symptoms and the only symptoms I had were the migraines.   I wish I had just gone to my Neurosurgeon out of town instead of a local Neurologist.  Now I have a pipeline stent scheduled for Aug 2 and 6 weeks later for the 2nd anuerysm.   Very scary!

Comment by Jill on June 12, 2012 at 6:04pm

Denise and Anuja,

I am making an appointment for a second opinion tomorrow. I cant thank you enough for responding to my post. Its very refreshing to know how many kind people really are out there and also to know that there are people going through similar issues that have information that can help another. Thank you both for the prayers,  your comments are much appreciated.

Comment by Anuja Mehta on June 12, 2012 at 9:19am

Jill,

Welcome to this site!! It's wonderful to use these groups as a sounding board from other folks that really understand what you're going through.  I agree with Denise...I think a second opinion would be a good idea.  It really struck me when you said he was "cold" and sort of hurried you through the information.  That's not right.  This isn't a small health issue and he should have had the courtesy and professional insight to give you time to ask ALL your questions.  Because without those questions answered...you're just going to stress out more...and that won't help your headaches at all either.  Keep us posted my dear and I'll be sending you good thoughts and prayers!!

-Anuja

Comment by L. Denise Gauthier on June 12, 2012 at 7:28am

Jill,

I read your story and like everyone else said--Welcome to this wonderful support group.  Someone is always here to listen.  My advice for you is to get a second opinion.  It can't hurt and you might find a doctor that is more willing to answer your questions and one that you can find easier to talk to.  It sounds like you are really stressed over this (and you have every right to be) and maybe seeing another doctor can help alleviate some of this.  Keep me posted--I will keep you in my prayers!

Denise

Comment by Jill on June 11, 2012 at 9:18pm

Hi my name is Jill, and I just joined this site today because I have been feeling like a ticking time bomb since I was diagnosed  in March this year. I had the worst headache of my life couldn't even put my head on a pillow and couldn't move, I went to the hospital where they  performed a spinal tap to check for meningitis, while that was negative they found blood in the tap and sent me for an MRA which showed the annie. They then sent me to a neurosurgeon who sent me for a ct scan to get a better look at it. I have a 2mm saccular aneurysm  in the cavernous segment of the right internal carotid artery (wherever that is? I was told its in the sinus area) I was told by the Dr that he wanted to just monitor it. He said if it were to rupture it most likely wouldn't kill me although it would however affect all of the nerves in my face. I have a couple of questions. My Dr seemed kind of cold and explained things very quickly leaving me to get mostly all of my information from the print out of my clinical summary from the nurse at his office. First did most or anyone on here go to see a different neurosurgeon for a second opinion? Does anyone have an annie in the same place? My Dr told me he didn't think that the headache I went to the hospital with was from the annie even though i have suffered migraines for years and this was much worse than any one before. He also said that he didn't think it had leaked, which makes me wonder why there was blood in the spinal tap? Its a very scary thing to be told and not a lot of info has been given to me. I Have an anxiety disorder and am nervous of heart palpitations affecting this. I am also waking up with headaches in the front of my head for the past three days right where it would hurt if you had a SINUS infection..Im just very scared about this whole thing and any information would help.  I hope I'm posting my comment in the right place as I have never done this before...lol.. also about a three weeks ago I was at work and it felt like my brain was vibrating ( I know, it sounds crazy even saying it) and lost my hearing for just a minute everything just went fuzzy sounding..has anyone else experienced this? I called and asked my Dr. and they said they had never heard of it.

Comment by Patricia Tapia on February 4, 2012 at 4:01am

Jim, I'm reading your comments and it's like I'm reading my story. I feel no one believes me. The doctors don't want to give me meds because I become addictive but what do I do to survive. They want me to start therapy but it's so painful that the next day I can't move from the pain. Every morning I roll out of bed to wake up my daughter to go to school and then back to bed because the pain is too much.. I totally understand you...what meds are you taking?

Comment by Patricia Tapia on February 4, 2012 at 3:36am

I started to read everyone's comments, but my vision and brain are not focusing that well. I'll continue tomorrow. I'm desperate! I had coiling done September 9, 2011. And since then I haven't had a day without a headache. The pain is always between a #4-#10 depending on what I did that day or the day before. Plus the headaches I lost mobility and eye sight from the left side of my body. If I get tired my pain increases, I loose my speech and I start with tremors. I just want to know if this is normal and what else to do...

Comment by Sturdyville on October 21, 2011 at 6:44pm

Does anyone else get this roaring sensation? I get the sensation on the right side of my head (this is the side I had the coiling done on).

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