The Brain Aneurysm Support Community

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This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals. Solicitation of any kind is not permitted on this website. Requesting of personal information of members on the site is prohibited. As this is a public forum, you may want to use a screen name or otherwise abbreviate your full name if you have privacy concerns. You can also change your privacy settings to determine who may view your profile and comments.

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Are You in Crisis

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit

http://www.suicide.org/international-suicide-hotlines.html

for the right numbers in your region.

 

Welcome to the Brain Aneurysm Support Community

The purpose of the Brain Aneurysm Support Community is to provide a forum for patients and their families affected by brain aneurysms to find support.

This forum is brought to you by Ben’s Friends in a partnership with the Brain Aneurysm Support Community. The site was based on a need for comprehensive information and support for brain aneurysm patients, their families, and the medical community.

The Brain Aneurysm Support Community is the nation’s premier nonprofit organization solely dedicated to providing critical awareness, education, support, and research funding to reduce the incidence of brain aneurysms. To find out more about The Brain Aneurysm Support Community and for more information on brain aneurysms, go to www.bafound.org

The Brain Aneurysm Support Community is a global community that embraces different cultures, faiths, attitudes and viewpoints. Please be respectful of this. The Brain Aneurysm Support Community is not the place for discussions on religion, sex, or politics. Discriminatory language will not be permitted.

Latest Activity

Anna replied to mahoneybirdie's discussion May need another PED in the group Pipeline Embolization Device (PED)
"You seem to have the exact problem I had. Had my first PED done in 2013, and a year later had another inserted with no problem at all after that. Follow up angiogram and MRAs show that there is no further leakage and all's well. Was prescribed…"
1 hour ago
mahoneybirdie liked mahoneybirdie's discussion May need another PED
3 hours ago
mahoneybirdie added a discussion to the group Pipeline Embolization Device (PED)
Thumbnail

May need another PED

Had a pipeline placed in 2013 and the aneurysm never fully occluded. Last year it was leaking just a bit and the surgeon thought it was because the stent had not completely epithelialized. Had another follow up angiogram today and now he thinks it is a different problem...that it is leaking out at one end of the stent and he needs to place another stent adjacent to the old one. Anyone else have anything like this happen? I am so bummed...
3 hours ago
Pam replied to Pam's discussion Just diagnosed. Completely overwhelmed.
"Thanks, everyone. I don't have a neurosurgeon yet to ask all this stuff to. I talked to the doctor who found it and he told me not to worry because the first test was inconclusive. My next test is a CT with contrast dye to get a better look. He…"
5 hours ago

Forum

Just diagnosed. Completely overwhelmed.

Started by Pam in Questions About Brain Aneurysms. Last reply by Pam 5 hours ago. 7 Replies

I had a head CT ordered by my ENT because my sense of smell and taste have been off for quite a while. My doctor called with the news that there is no tumor causing my smell and taste to be off, but my basilar artery is 8mm instead of 4mm. He kept…Continue

?

Started by ronk in Questions About Brain Aneurysms. Last reply by Merl 16 hours ago. 1 Reply

my frozen shoulder isnt frozen, xrays showing hole in tissues, they are calling it something arthropathy?? any one heard of this? i guess the 2 yrs of stretchings, lasers stims and ultrasounds was for naught, im really disgusted and now going for…Continue

Scheduled for angiogram

Started by LDB0174 in Questions About Brain Aneurysms. Last reply by JT yesterday. 1 Reply

Was excited that my appointment with a neurosurgeon was moved up due to a cancellation, he was very nice. I didn't learn much more than I already learned from Google. Although he said it was larger than what my pcp told me. 3-3.5mm on the top of my…Continue

Venous aneurism

Started by Sean in Questions About Brain Aneurysms. Last reply by Sean yesterday. 4 Replies

I have a tentative diagnosis of an isolated venous aneurysm (one off a vein and not an artery). It is 12 mm across. They are trying to figure what to do with it. I have symptoms of headache and nausea.Apparently a venous aneurysm is very rare. The…Continue

 
 
 

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