The Brain Aneurysm Support Community

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To maintain your privacy in a google-y universe, please do not use your real-life name.
Because we are a peer-to-peer support network, we ask that members not include honorifics, degrees or professional designations such as RN, Imam, PhD, Adv, MSW, Sr, Dr, Dame, Sgt, Rev, DO or similar in their screen name. We will not approve these after Sept 2015.

To change your screen name, click here

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Disclaimer

This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals. Solicitation of any kind is not permitted on this website. Requesting of personal information of members on the site is prohibited. As this is a public forum, you may want to use a screen name or otherwise abbreviate your full name if you have privacy concerns. You can also change your privacy settings to determine who may view your profile and comments.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.
  11. This is a peer to peer group so please no professional "titles"

Thanks for your cooperation.

Are You in Crisis

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit

http://www.suicide.org/international-suicide-hotlines.html

for the right numbers in your region.

 

Welcome to the Brain Aneurysm Support Community

MAYDAY MAYDAY MAYDAY

It has happened. We have received word that the company hosting the BAFsupport.org website is going under, probably today. When they switch the lights off, this site will be gone forever.  We are working behind the scene, packing and transferring our data as quickly as possible, hoping that none will be lost in the move.

Discussions will move, but your personal mail and blogs will not, so if you get a chance, you might want to copy and save your personal information (blogs, email addresses, etc.) before this site goes down.

The new site will have the same url address as this one, but will look a bit different. There will be a large notice at the top of the page with instructions for how to log in and reclaim your profile. On other communities, this has worked with no problems at all.

We are now hard at work transferring data, and doing the notifications. We hope to see you in our new cyberhome!

Over and out

Your ModSupport Team, TJ, JulesG and Seenie and Ben.

Latest Activity


Moderator
Moltroub commented on Christine's group Disability issues
"So it's been a long time and I just heard from the lawyers office that SS has decided to review my case. Don't know why but the paralegal says they may just go ahead and give me my disability. Have to take in my W2 from 2014 and…"
1 hour ago
G and K replied to Jennifer's discussion Celebrating 3 year "Anniversary" of rupture
"Congrats on your anniversary! I'm curious what the signs and symptoms you had of a pulmonary aneurysm?"
yesterday
G and K liked Jennifer's discussion Celebrating 3 year "Anniversary" of rupture
yesterday
G and K replied to Katram2's discussion Thank you in the group Unruptured Brain Aneurysms
"To everyone, if I was having a craniotomy done and I haven't but my husband has, my first question if I had two aneurysms I think would be if you were going to clip one why wouldn't you clip the other one? We have a vascular specialist…"
yesterday

Forum

Celebrating 3 year "Anniversary" of rupture

Started by Jennifer in Success Stories. Last reply by G and K yesterday. 23 Replies

I am celebrating my 3 year "anniversary" today - survived a ruptured aneurysm on 5/5/13 and then survived: a botched clipping surgery, another clipping surgery to fix it, a pulmonary embolism, etc. I'm grateful to still be here for my sons, now age…Continue

Clipping for aneurysm done on Thursday

Started by Christine in Post Surgical Rcovery. Last reply by G and K yesterday. 15 Replies

Well, I had two annies treated three years ago and that left a small PCOM 2x 3 mm.  The decision initially was to wait and watch, we did that but then started to see growth.  Went to Mayo Clinic to see if it could be coiled however the type and…Continue

The struggles and questions of a survivor's wife

Started by survivor's wife in Questions About Brain Aneurysms. Last reply by G and K yesterday. 22 Replies

Harlylena, I so appreciate your analogy of the tree and strength. I'm in great need of encouragement tonight. I'm the survivors wife. I'm so tired and weary, missing our past life before this nightmare shook the very core of our lives. My husband is…Continue

Help Me Understand this Seeming ZigZag Recovery Pattern

Started by Atisbange Isaac in Questions About Brain Aneurysms. Last reply by G and K yesterday. 1 Reply

I am a very grateful survivor of a rupture aneurysm who underwent a successful suboccipital craniotomy for AVM resection on 21st December 2015. I stayed in the hospital and rehabilitation for 7 weeks and have been home since early February 2016,…Continue

 
 
 

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